On May 15th, 2018 Mary Kay Ballasiotes, International Alliance for Pediatric Stroke founder and president, was a panelist and participant in the AEMCC, which was part of the Society for Academic Emergency Medicine (SAEM) annual meeting. The overarching goal of this Consensus Conference is to develop the pediatric emergency medicine (PEM) research agenda for the next decade in order to reduce health outcome gaps in the treatment of acutely ill and injured children. Since acute strokes in children and teens is often misdiagnosed or delayed, this was a perfect venue for inclusion of this critical variability in emergency care.
Mary Kay shared the heartbreaking story of Lelaina Jaymes Fitzsimons (Laney), who suffered multiple strokes over the course of a month, but they were misdiagnosed as seizures. By the time an MRI was done, her strokes had caused severe damage to her brain. Stories like Laney’s will be important to include in the write-up of the proceedings from the conference that will be published in the December 2018 issue of Academic of Emergency Medicine.
This conference was funded in part by a PCORI Engagement in Research Project.