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EDS Wellness' Newsletter - September 2017
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EDS Wellness' Integrative Wellness Newsletter

Resources to help restore function and strategies for living well with Ehlers-Danlos syndromes, Hypermobility Spectrum Disorders, other hypermobility syndromes & related conditions
It takes a village.....
Join EDS Wellness in creating a multiorganizational and collaborative community to effect global change. 

Thoughts or suggestions that you would like to share? 

Go here to submit comments, suggestions or ideas easily through our contact form.
Click to Join Us Today!
EDS Wellness is honored to have been one of the collaborative organizations mentioned in HMSA's recent journal publication. We've thoroughly enjoyed getting to know the amazing trustees and volunteers of the Hypermobility Syndromes Association (HMSA) -- there are countless opportunities and ways to work alongside our partner organizations to ensure that we help support the broader hypermobility-related disorders community (including their comorbid conditions) as much as possible!  

We are grateful to be forming open, constructive, and mutually respectful patient & provider-centric relationships with several amazing organizations (including HMSA), such as 
The Coalition Against Pediatric Pain (TCAPP), The International Pain Foundation (
iPain), The Mindfulness Center, Pain Down There, Annabelle's Challenge, EDS Awareness, EDSers United, EDS C.A.R.E.S., EDS TodayEDS WisconsinThe Mighty, One EDS Voice & many more!

 Each organization mentioned above is devoted to helping improve the lives of the individuals in the communities that they serve -- and beyond! Thank you! 

We are #Stronger2Gether.

To read more about our collaborative relationship with HMSA, TCAPP & iPain by going 
here. And to read more about our exciting partnership with The Mighty, please go to EDS Wellness' Partnership with The Mighty.
Updates, Important Information & Announcements:

Join Team EDS Wellness in the #AmericaRuns5k with Charity Footprints!

EDS Wellness is donating 100% of the proceeds from the
September 2017 America Runs 5K to families and individuals impacted by hurricane Harvey & Irma!

Over this 15-day challenge, AR5K participants run, walk and ride anywhere & anytime and track their workouts on our free iOS & Android mobile applications. Charity Footprints donates $2 to the non-profit for each day that a participant tracks at least a 1-mile workout. For example - If a participant finishes at least a 1-mile workout for each day of the challenge, they earn $30 for the non-profit team.

Registration is $50. Additional fundraising is optional but incredibly needed and welcome! Miles are cumulative over 15 days (we can also help manually convert and add steps walked per day if needed).  Charity Footprints gives over 90% of the funds raised through registration fees and donations directly back to EDS Wellness.


You can manually enter your miles per day here

Register to Join Team EDS Wellness

2017 Physicians Learning Conference CME Submission Update:

"This Live activity, 2017 Physicians Learning Conference, with a beginning date of 06/10/2017, has been reviewed and is acceptable for up to 13.00 Prescribed and 2.00 Elective credit(s) by the American Academy of Family Physicians. Physicians should claim only the credit commensurate with the extent of their participation in the activity."

AMA/AAFP Equivalency:

AAFP Prescribed credit is accepted by the American Medical Association as equivalent to AMA PRA Category 1 credit(s) toward the AMA Physicians Recognition Award. When applying for the AMA PRA, Prescribed credit earned must be reported as Prescribed, not as Category 1.

A specific email will be sent to the 2017 Physicians Learning Conference Attendees & Speakers with pertinent information, including all promised post-conference materials in the infamous zip file. However, you can review the list of organizations that accept AAFP's prescribed credits here

If you have any questions concerning retroactive approval for your CME activity, please send me an email: Kendra@edswellness.org, or contact AAFP directly: 1-800-274-2237 or cmecredit@aafp.org

Important schedule changes to our weekly 'Mind-Body Strategies for Hypermobility with Chronic Pain' class, program & support group - please read!
Yoga for Chronic Pain: Held Thursday's at The Mindfulness Center from 1:15-2:15pm. $20 per class. Registration for this class is requested through The Mindfulness Center's website (see link below), but walk-ins are always welcome! Additional class packages offered, as are scholarships and sliding-scale options if needed. 

**Please note - we will NOT be having class on September 21st, 2017**

'Mind-Body Strategies for Hypermobility with Chronic Pain' Support Group: Held 1x per month on the 2nd Thursday of each month from 2:15pm-3:30pm (directly following our Yoga for Chronic Pain class). This program is offered by donation to help our support this support group and fund pertinent research. Link to donate direct.
 
Register to join us!

Future dates for weekend & evening classes, workshops, and research opportunities will be shared soon! We have plans for kids & teens too!
 
Resources & Materials:
View Listing of Wellapalooza 2017 Links & Resources
View Listing of Wellapalooza 2016 Links & Resources
View Listing of Wellapalooza 2015 Links & Resources
Videos: 
Wellapalooza 2017 - Practicing Yoga Safely with Hypermobility with Kendra Neilsen Myles/EDS Wellness (video recording)

Video Recordings from classes, workshops and conferences/retreats are all available on the Strength/Flexibility/Health/EDS YouTube Channel. Click to subscribe!

Video recordings from Wellapalooza 2017 & our 2017 Physicians Learning Conference will be shared on EDS Wellness' new e-learning platform - launching soon!
Recent Articles and Publications:
Research Studies & Opportunities:
Patient-centered Events & Activties:

Non-members who would like to attend the upcoming EDS Support UK & HMSA Management and Wellbeing Conference (30 Sept – 1 Oct 2017) are able to purchase tickets through the link provided below. Conference schedule, speaker line-up, and event information is also available through the link below: https://www.eventbrite.co.uk/e/management-and-wellbeing-conference-2017-by-eds-uk-and-hmsa-tickets-35170507936

The Global Alliance for Hypermobility-related Disorders:

International Continuing Medical Education & Professional Networking Opportunities 
The HMSA Kent Model

A comprehensive medical education program & patient care model developed by the Hypermobility Syndromes Association (HMSA) for healthcare providers concerning the proper diagnosis and management of patients with hypermobility-related disorders.

To learn more, please visit 'The HMSA Kent Model.'
2018 International Congress on Integrative Medicine & Health

Date:
May 8-11th, 2018
City/State: Baltimore, Maryland 

Healthcare professionals who wish to submit abstracts should do so by October 11th, 2017. To learn more, please visit 2018 International Congress on Integrative Medicine & Health
‘Pain Management for Patients with Hypermobility Disorders: Frequently Missed Causes of Chronic Pain’

Open Access CME/Continuing Ed Activity Published by Linda Bluestein, M.D., member of EDS Wellness' Medical Advisory Board.
Quick Tips for Restoring Function & Living Well:
What people are saying: 

"My daughter has been suffering from POTS and hEDS for 10 years. Although we contacted and visited many doctors and tried a variety of therapies over the years, no one knew how to help my daughter. It doesn't even come close to say how frustrated I was. Fortunately, I met Kendra at her booth with information on EDS Wellness; this moment was a turning point where we found help and hope! I cannot write enough about how Kendra and EDS Wellness has transformed my life, my daughter's life, and the lives of so many others. EDS Wellness is about treating the whole person. In addition to maintaining a website that encompasses so much pertinent information as well as numerous links for help, Kendra has run several amazing conferences (like Wellapalooza) for both doctors and patients. Since there is such a variety of medical issues that patients need to deal with, these conferences focus on mind and body wellness, integrative medicine, and various approaches to deal with chronic pain and other issues. This is an exceptional organization that I highly recommend to everyone!"

Help us reach Top-Rated Nonprofit Status for 2017 by submitting a review on GreatNonprofits by October 31st, 2017!
Submit a Review on GreatNonProfits
Nominated for 4 Wego Health Awards! Thank you!
I Want To Help Support EDS Wellness!

Donations are critical.

To learn about the various ways you can help support EDS Wellness, such as scholarships/sponsorships for patients, please visit Donations. If you would like to donate directly to EDS Wellness'go here. Interested Sponsors/Vendors/Partners can learn more by clicking here

All donations are 100% tax-deductible per 501(c)(3) nonprofit regulations.

 Address for correspondence or to send donation checks:

7717 Maryknoll Ct. 
Bethesda, MD 20817 USA
Phone: 240-687-779
Email: info@edswellness.org
Website: www.edswellness.org

EIN/Tax ID: 81-1592109

EDS Wellness' business documents can be found here.
EDS Wellness, Inc. is a 501(c)(3) nonprofit organization promoting health education, integrative healthcare, and wellness strategies for living well with hypermobility-related syndromes, such as Ehlers-Danlos syndromes (EDS), Hypermobility Spectrum Disorders (HSD), and comorbid multisystem conditions, through print and digital resources, such professional and patient-specific programs, seminars, webinars, conferences, and tax-exempt services.

EDS Wellness provides evidence-based research, education, and support various movement, nutrition, and mind-body strategies by collaborating with healthcare providers and like-minded organizations, to help restore function, improve the quality of life and overall well-being of individuals living with chronic, complex, and multisystemic conditions.

Copyright © 2017 EDS Wellness, Inc., All rights reserved.


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