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September e-news from Limbs 4 Kids
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Family Get-Together - Brisbane (Oct 1st, 9am) 


This family networking event is being hosted by Brooke and Michelle and through the Facebook Group Uniting Limb Difference Australians Together.  It is being held at Chipmunks Playland, 70 Michael Avenue, Morayfield, Queensland 4501.  The picture here features Brooke and Michelle’s gorgeous children at their last get-together! 

You can RSVP via the Chipmunk Play Facebook Event Page or if you don’t use Facebook contact kids@limbs4life.org.au and we’ll let the organisers know.

Family Get-Together - Melbourne (Oct 1st, 11am) 


This family networking event is being hosted by Allison.  It is being held at Livvi’s Place within Marriott Waters Reserve, Boland Drive, Lyndhurst, 3975.  Livvi’s Place is an inclusive playground that opened just recently in the South-East suburbs of Melbourne.  The accompanying picture shows the crowds and excitement at the Livvi’s Place opening.  For more information and to RSVP email Allison.
 

Save the date - 'Come and Try Athletics Day' in Sydney
 

Limbs 4 Kids, in partnership with Athletics Australia and Athletics NSW, will be holding a ‘Come and Try’ day on the 29th of November.  This event will allow families to meet, enable children and young people with limb differences and their siblings to try a variety of athletics activities, hear from local and Paralympic coaches and have fun. It is also the launch of a national partnership between Limbs 4 Life and Athletics Australia.  More details, including how to register and location, will be coming soon!

NDIS roll-out in New South Wales and Victoria
 

The National Disability Insurance Scheme (NDIS) bi-lateral agreement was signed by Prime Minister Turnbull and Premier Baird in New South Wales and Premier Andrews in Victoria on the 16th of September.  This agreement means that the NDIS will begin a geographical roll-out from the middle of 2016, region by region, in these two states. ​

The NDIS is being introduced in stages, because it’s a big change and it is important ensure it is working and is sustainable. People currently receiving Commonwealth or state-based services in New South Wales and Victoria will continue to receive these until the NDIS is launched in their own region.
 
Other states and territories are yet to finalise their agreements with the Commonwealth Government. For more information, and to find out when the NDIS will be rolled-out in your region, visit the NDIS website.  

Jake Widjaya and his 'My Helping Hand' DVD
 

Limbs 4 Kids were thrilled to receive an article by Jake Widjaya. Seventeen year old Jake is busy in his first year of University, as well as participating in a range of activities, but also makes time to work with the Sydney Children’s Hospital to help kids with a limb difference. When Jake was nine he made a DVD ‘My Helping Hand’ which profiles his family, medical team and his own development. Jake would like to give-away copies of his DVD to Australian Limbs 4 Kids families. ​

Jake’s message is “there is always a way to do things and that the only thing that can possibly stop you, is yourself”. To find out more about Jake and how to order his DVD read his story in the Limbs 4 Kids website

You can also view Jake's interview and story as part of the 2013 Sydney Children's Hospital Telethon. It doesn't only showcase all the academic and sporting activities Jake is involved in but also profiles his parents and medical teams that support him. Thanks tp Jake and his parents for sharing his story, article and videos!

Train as a Limbs 4 Kids Peer Support Volunteer


Are you interested in being trained as a ‘Parent Peer Support Volunteer’? If you are the parent/carer of a child with limb difference or an adult who grew up with childhood limb difference this volunteer opportunity might be for you? ​
 
Trained Volunteers can then be matched to other parents / carers seeking the support of another person who ‘has been through what they are going through’.  Peer support may be provided over the phone, via an email or occasionally a face-to-face meeting.
 
The FREE training will involve participants being police checked, taking part in a one hour webinar training session (Tuesday 20th October 2015, 8pm EST) and and undertaking a short survey after the training.  You will also receive a Program Manual and full support from Limbs 4 Life staff.  Volunteers must be based in Australia.
 
If you would like to reserve a place in the training or want more information about the Parent Peer Support Volunteer Program contact Fiona at fiona@limbs4life.org.au or call 1300 782 231.

Participate in Limbs 4 Kids Research


Would you like to take part in the Monash University research into the Limbs 4 Kids program and the needs of Australian parents / carers of children with limb difference? ​
 
The confidential survey only takes 10 minutes to complete and it is anticipated that the outcomes of this research will strengthen the program and enable Limbs 4 Life to advocate on behalf of parents and children with government and policy-makers. It is the first research of its kind in Australia.
 
To access the survey – https://monashmnhs.qualtrics.com/SE/?SID=SV_9RF3r5la6vo6k4t
 
If you need further information please contact the lead researcher Dr Narelle Warren on 03 9903 4046 or at Narelle.Warren@monash.edu 

Take part in an Australian Congenital Fibular Hemimelia research study
 

Do you live in Australia and are the parent of a child (aged 7 – 21 years), or a young person yourself, with congenital fibular hemimelia and would like to help others?  Dr Louise Tofts and the rehabilitation team at The Sydney Children’s Hospital Network are trying to find out more about the quality of life and lower limb function of children and young people with congenital fibular hemimelia. ​
 
This research study involves three questionnaires, and it is expected that the information gained will greatly improve outcomes for Australian families and children with congenital fibular hemimelia.

For more information contact Joshua Pate at joshua.pate@health.nsw.gov.au or call (02) 9845 2823

Would you like to set up a Parent Support Group?
 

Limbs 4 Kids is keen to support parents and carers to establish a Support Group or Get-Together Network in their local community.  Over time we hope to have Support Groups / Networks operating in various parts of Australia, allowing parents and families to connect with others in a family friendly settings.  Support Groups can be formal meetings or informal meeting allowing families and children to meet in social settings (eg. parks, activity centres). ​

Support Groups can be made up of parents, carers, family members and adult amputees that share common needs and experiences.  Being part of a Support Group can have many benefits for members, including: the sharing of practical information; emotional support; friendship; and, guest speakers.
 
Limbs 4 Kids can assist Support Groups by: offering training and support; sourcing members and promoting events; finding meeting venues; small funding support; and, sourcing guest speakers if needed.
 
If you are interested in learning about Support Groups or thinking about establishing one in your community visit the Limbs 4 Kids website and/or contact Fiona at fiona@limbs4life.org.au or 1300 782 231 (toll free).

Are you a member of the Limbs 4 Kids Facebook Group?
 

If you are a parent / carer / family member of a child with a limb difference, or an adult who grew up with childhood limb difference, you may want to join our Limbs 4 Kids Facebook Group?  ​

As this is a secure Facebook Group you will need to ask to join and Limbs 4 Life will then approve you to become a member.  This Group provides a space for parents to connect with one another, share information and provide information peer support.

Video: The Rise of Amputee Football (Soccer) 
 

This video is about Ray Westbrook, who lost his leg due to an accident when he was 14 years of age. Ray is now the Captain of the Great Britain Amputee side and founder of Portsmouth Amputee FC. Watch The Rise of Amputee Football video. 

Thrive - Spring Edition 
 

The Spring edition of Thrive magazine features articles about: Harry and his parents Jen and Peter Mitten; Ben Swain, an adult who grew up with limb difference to become a lawyer and para-cyclist; two Prosthetists, Cameron and Patrick; Jessica Smith; information about our upcoming webinar Parent Peer Support Training program; and, an upcoming Parent Networking Activity taking place in Brisbane. 
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