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Newsletter July 2017

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Transforming lives of people with disabilities, visual impairments and special needs through the use of assistive technology

Dear family, friends and supporters

This newsletter is a little late but once you have read all our exciting news, we are sure you will agree it was worth the wait!  


First of all we have to tell you that Tuesday 23rd May marked the second birthday of the Janki Saye Foundation. We had much to celebrate. Two years on - 19 grants awarded, 19 lives transformed!  

This is an incredible achievement and we extend enormous gratitude to everyone who helped to make this possible. When you have a few moments, please take the time to watch our updated video which showcases our work and you will see how your support really does make a difference.

Also we are delighted that Dave Webb and Lou Pickles have agreed to join us as Associates. Have a look at our About Us webpage to find out more about them and please join us in welcoming them both to team JSF!  


And now on to all the latest news on grants and fundraising activities...

GRANTS AWARDED

Charlie 

Charlie is 4 years old. He is severely autistic, he has global development delay, significant special educational needs and is non verbal. 

Charlie needs constant care and supervision for all aspects of his daily life. He is easily distressed and finds it difficult to interact with those around him.

His educational psychologist noted that, on occasions, Charlie managed to use apps on his support worker's iPad. She has now recommended that he have one of his own with special applications as that would help him develop attention skills and enable him to make choices and communicate his preferences. 

Charlie was awarded a grant of £339 to fund an iPad.

Daniel

Daniel is 19 years old. He has cerebral palsy, epilepsy, global developmental delay and chromosomal disorder. He is wheelchair bound and totally dependent on his family and carers for all aspects his daily life.

Daniel has no verbal communication but understands what is being said to him. He communicates through smiling and by having people close to him interpreting his behaviours and levels of movement/agitation.

Currently Daniel has access to a children's hospice where his Occupational Therapist (OT) is helping with his transition for when he has to leave at the age of 21. They trialled the EyeGaze system to see if it could support Daniel as a communication tool and allow for skills development as well as enabling him to play and socialise through games and activities.

Daniel immediately understood how to interact with EyeGaze and showed evident enjoyment, concentration and understanding of cause and effect. Based on this, his family arranged to loan the system for one month to see if Daniel could engage with the system at home over a longer period of time.

With the help of his sister who personalised the system for his needs, Daniel was able to develop and improve his skills and this has been a very positive process for the family as a whole. His OT observed him using EyeGaze in his home environment and noticed he was playing more complicated cause and effect games and could pick out words and pictures to relay his choices to his family. She felt that continued use of EyeGaze would allow Daniel have more choice in his day to day activities and would enable him to further  develop his skills.

Daniel  was awarded a grant of £5,000 to fund the EyeGaze system. 

When you have a moment, you can read the stories  of all our beneficiaries. We also try to follow up with each individual so that we can report back on their progress and you will see how your support and generosity really does transform lives! 

FUNDRAISING NEWS

Daniel Ralph  - London Marathon and Cross Channel Kayaking


Congratulations to Daniel Ralph for his heroic effort in completing the London Marathon in April and for raising so much money for JSF.

This was an incredible challenge for Daniel. Not only was it his first ever marathon but also, after his knee gave out in mile 2, he refused to give up and somehow managed to drag himself along 24 miles to the finish line! 


Then, earlier this month, Daniel took to the seas to kayak across the English channel to raise even more money. Unfortunately he didn't make it to France - after a tough 22 miles of kayaking in dangerous seas and increasingly strong currents, he was advised, in the interests of safety, to abort the trip. But what a brave attempt and we are thankful that he made it back safe and sound!

We really do applaud Daniel for his valiant efforts for which he has raised a spectacular £4,100!  

If you recall from our last newsletter, we told you that the money Daniel raises would fund an EyeGaze system for 11 year old George who has cerebral palsy, epilepsy and severe learning difficulties. Well, since then, we received the good news that another charity had been able to help George.

This means that we were able to use this money to purchase the EyeGaze system to help 19 year old Daniel with cerebral palsy, whom we talked about earlier.

Phil Anthony - Swimathon  


Huge thanks to Phil for braving the freezing April temperatures to embark on an outdoor swimathon and raising £454!

We would also like to say a special thank you to Phil and staff at Co-operative Systems who made a significant donation to help Daniel Ralph reach his London Marathon fundraising target.

Fiona and Robbie - Hackney Half Marathon  


Congratulations to Fiona Anderson and Robbie Anderson for completing this challenging 13.1 mile/21km run around the borough of Hackney in May and raising £866!!

Thank you so much - we really appreciate your efforts and you know how much difference those funds can make.

 Hayley Harper and Team Opia - Tough Mudder  


Well done Team Opia for completing the Tough Mudder challenge and raising £177.

The team waded through 5 miles of mud and13 obstacles. We really appreciate the things you lovely people are willing to put yourselves through to raise money for JSF. Thank you!!!

 Royal Parks Half Marathon - Sunday 8th October  


We were successful in our bid for 2 charity places for this very popular event and have awarded these places to Patrice Fanals and Simon Brigg; neither of whom have run a half marathon before

This is a real challenge for them and they will need lots of support.

Please sponsor Patrice or Simon and help them raise as much money as they can.

We are also delighted that Robbie Anderson was successful in the open ballot and will once again don his running shoes to raise funds for JSF. He too is relying on your generosity and support, so please sponsor him.  

We wish Patrice, Simon and Robbie all the best of luck with their training and will be there to cheer them over the finish line.

Easy Fundraising

And dont forget there are much easier ways to raise money - you don't have to run, swim or wade through mud. You could just go shopping...

Did you know that whenever you buy anything online - from your weekly shop to your annual holiday - you could be collecting free donations for Janki Saye Foundation?

There are over 3,000 shops and sites on board ready to make a donation, including Amazon, John Lewis, Aviva, thetrainline and Sainsbury's – it doesn't cost you a penny extra!

It's as easy as 1, 2, 3...

1. Head to https://www.easyfundraising.org.uk/causes/jankisayefoundation/ and join for free.

2. Every time you shop online, go to easyfundraising first to find the site you want and start shopping.

3. After you’ve checked out, that retailer will make a donation to your good cause for no extra cost whatsoever!

There are no catches or hidden charges and we at JSF will be really grateful for your donations.

So as you can, here at JSF HQ, we have been very busy, and our amazing fundraisers out there have gone to some extraordinary lengths (literally) to help us.

At this point, all the money raised has been used to award grants which means that our funds are almost depleted.

Until we raise more funds, we will not be able to approve any more grant requests!


As we have said before, there are many more people out there who need our help, so we really can't "do what we do"  without your valued support.


We are extremely grateful for whatever you can do - please check out our Donation and Fundraising pages for more information on how you can get involved.

A HUGE thank you again from us all.

See you next time...

Best wishes 


Sheila, Mala and Ian 
Trustees, Janki Saye Foundation

www.jankisaye.org

 

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