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Thank you for your support. Please share, post, and pass this newsletter along to others in the dystonia community.
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News from the Executive Director
 
We're already halfway through October and I'm pleased to announce that our Dystonia Patient Package is finally here. Special thanks to the many volunteers who provided feedback into this document.

In the coming weeks and months, you will find this package at your local movement disorder clinic, or find the online version available here.  Our hope is that it will serve as a great resource to the dystonia community. 

YOU STILL HAVE TIME TO WIN GREAT PRIZES!
We've also launched the first ever Canadian Dystonia Survey - spend a few minutes providing us with some information about your dystonia and you can help to direct the kind of programs and information we provide moving forward - plus you'll have the chance to win some great prizes, including a new iPad PRO.  
If you've already provided your feedback into this survey, thank you. 

Please read on for the latest news from  the dystonia community - and please pass this e-newsletter on to others.  As always, thanks for your support.  

Sincerely,
Stefanie Ince,  Executive Director, DMRFC



 
Fill out this five-minute survey and you'll have the chance to direct the information you receive from us moving forward - and help us to strengthen the network and voice for those living with dystonia in Canada, with a chance to win some great prizing.  

The Dystonia Patient Package is Here! 
Learn everything you need to know about forms of dystonia, treating dystonia, living well with dystonia, and more. 
See it here

Our Zoo Walk was a Great Success - Thanks to everyone for your support! 
With Special thanks Merz Canada for their generous sponsorship: 


As well, a thank you to Mastermind Toys, Treasure Island Toys, UMBRA, and  Pape Market Foodland for their prize and food donations.


Claire Smith's Dystonia is In the Background
Claire Smith's dystonia story is featured here. Read her brave and inspiring story about how she encountered dystonia, and how she dances through her life now.  


Dystonia Moves Me was a great success! 

Throughout September, the DMRF and other dystonia supporters planned a number of activities and events to bring dystonia greater visibility.  Dystonia Awareness Month ended on a high note when US Senators Johnny Isakson (R - GA) and Jeff Merkley (D - OR) co-led Senate Resolution 601 recognizing September as National Dystonia Awareness Month.  Congratulations to everyone involved!  Click Here for more community inspired Dystonia Moves Me activities.


Joining the DMRF Canada Monthly Giving Team with as little as $5 per month!  

Monthly giving offers you a way to support our programs and services throughout the year. Join a group of dedicated individuals who are committed to long-term improvements in the lives of individuals suffering from dystonia.  Any amount will help! And you'll feel great knowing you are making a significant difference to a cause you care about. 
Help us to find the cure for dystonia. Donate Today.  

 
Dystonia In the Headlines
Dystonia has been front and center in the headlines recently.  Dystonia advocate and DMRF Canada Director, on the board of Directors, Heather Connor, had her recent blog:  "Kevin Pillar Returned a Piece of my Sons' Childhood' published in the Huffington Post!  Read her heartfelt story here. 

As well, another story recently made headlines in the National Post. Dystonia: An Heir to Misfortune, is another heartbreaking and honest story that has been shared nationally.  Please read, pass and share these stories with your networks. 
Upcoming Support Groups
and Events:  


October 19 - Edmonton
October 28 - Toronto
November 5th - Hamilton 
November 5th - Vancouver
November 5th - London
November 8th - Ottawa
November 13th - Edmonton Yogatonia
November 22nd - Kelowna
November 26th - Montreal 
November 28th - Toronto
December 3rd - Hamilton 
Find out more about your local Support Group here

The Dystonia Patient Education Session in Edmonton was a Success! 

A heartfelt thank you to  Dr. Martin, Dr. Sankar,  Dr. Laurie Zalmanowiz, as well as the more than 80 people who came to the event! 

Thanks to our Sponsors: 

Buy Labels for Dystonia!

Everyone needs labels, right? Consider purchasing Mabel's Label's and you will be supporting the DMRF Canada - simply click here and any purchase will help us to fund dystonia research:

Do you have Blepharospasm?
 
The Dystonia Coalition is Conducting a study to develop the best way to measure the symptoms and impact of Blepharospasm. This study is being conducted at Toronto Western Hospital by: Dr. Susan Fox
To participate and for study details click here 
As well,  you may want to consider reaching out to the Benign Essential Blepharospasm Canadian Research Foundation (BEB). You can visit the website here for more information.  
Want to Start a Local Support Group? Email Us Today! Info@dystoniacanada.org

To help spread the word about dystonia and the DMRF Canada please like our page and invite your Facebook friends and family to like as well encouraging them to support you, and the dystonia community in Canada.
Dystonia Medical Research Foundation Canada

Our mailing address is:
305-121 Richmond Street West · Toronto, Ontario · M5H 2K1

Tel: (416) 488-6974 · Fax: (416) 488-5878
Toll Free: (800) 361-8061
En français (800) 787-1015
Charitable Registration Number 12661 6598 RR0001

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