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Offering educational, social and interactive programs and events that enhance daily life for people with Parkinson disease and other movement disorders and their care partners.
www.PMDAlliance.org      800.256.0966
IN THIS E-NEWSLETTER
  1. A Message from PMDAlliance
  2. Stay Hydrated! - Educational Article 
  3. MOVE IT!™  Streaming Exercise Club
  4. Parkinson's Psychosis - Clinical Perspectives - Educational Article 
  5. Renew! Retreat
  6. Upcoming Conferences & Renew! Retreat
  7. Renew Retreat.  Living Well with PD. Care Partner Corner
  8. Donor Appreciation & Memorial
  9. Save the Date Listing
  10. PD Resources
We are all about YOU!

Parkinson & Movement Disorder Alliance was started because we saw tremendous unmet need for people with PD, care partners and people with other movement disorders. While there are some fine national organizations attentive to research that mobilize for large-scale events, such as the Michael J Fox Foundation, the World Parkinson's Coalition, and the Davis Phinney Foundation, we saw a need right here, right now - every day.  

Movement disorders influence our everyday lives.  They impact our time, energy, relationships, and wellbeing.  This is true whether you are a person living with the disease or a care partner.  Our programs are designed to capture the best that technology and innovation offer to transform and improve quality of life.  We focus on you first - then disease!

As the only non-profit organization with staff on the ground serving people with PD and other movement disorders across all of Arizona, we offer education, social opportunities and exercise and wellness options in both metro and underserved communities.  Together with our 11 movement disorder physician partners and advisors, we design programs with you in mind. Next month we will share our 6-month report with you. outlining our services and impact for the first 2 quarters of 2016.

We invite you to get involved and be a part of our community.  Live fully! 

Sarah Jones, Executive Director
HELP US SERVE YOU BETTER!
Currently you're receiving every email we send out, regardless of where you live. We now have the capacity to sort our mailings by address/zipcode, but we don't have that information yet.

Please partner with us to serve you better by updating your subscriber profile.  Our goal is to have all subscribers updated by September.  

Why does this matter?
  • Get Out! notifications can be sorted and sent only to individuals living in reach of each event.
  • Address and zip code information assists us with program planning 
  • Many grants require that we capture where the people we serve live.  Adding this information is essential for program sustainability.
  • The ability to map service needs assists us with resource allocation, outreach and educational activities.
We do not share or sell information.  This information is used exclusively to help us serve you better!  Simply click here to update your profile:
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IN ARIZONA IT’S A DRY HEAT, BUT IT’S STILL HEATjudy headshot

OLDER ADULTS MORE VULNERABLE TO
HEAT AND DEHYDRATION


Judy Talley, MA Gerontology
Program Director, PMDAlliance

 

When considering heat illness or dehydration in the elderly it's important to realize that they may not report feeling hot or thirsty. Age related changes make many older adults less sensitive to thirst and overheating sensations. Those with dementia may be unable to identify sources of pain or illness and communicate about them.

Elderly people do not adjust as well as young people to sudden changes in temperature. They’re more likely to have medical conditions that change normal body responses and take medications that impair the body's ability to perspire and regulate its temperature....

The risk of heat illness increases when an individual is overweight, drinking alcoholic beverages, has heart, lung, or kidney disease, or other illnesses that cause general weakness or fever. High blood pressure or changes in diet that disturb electrolyte balance can increase risk. Living in a home that doesn’t have air conditioning is an environmental risk factor. 

Read More
Parkinson's Exercise - Wherever You Are Located

 

PMDAlliance's Move It!™exercise clubs provide group-based exercise for people with PD who live in underserved communities or may be home bound,  as well as those that are part time residents.  

Unlike exercising to a DVD, which offers no community engagement, socialization or feedback and relies entirely on self motivation, our Move It!™clubs offer active, real time exercise using internet technology. It enables people with PD to interact with each other, develop a sense of community, and participate in an exercise program that is specific to their needs.

Read more
THE DOCTOR IS IN
Scott Sherman, MD, PhD
 
PARKINSON'S HALLUCINATIONS
Below is a selection From A Full Article

Up to 50% of people with Parkinson’s have or will develop visual hallucinations. These most often occur as a side effect of the medications used to control the movement problems that occur in PD.

As readers of this column will understand, movement problems such as tremor, stiffness, slowness and walking are only part of the challenge of living with PD. Non-motor symptoms that occur in addition to these also require our attention. Levodopa, amantadine, dopamine agonists (ropinirole, pramipexole, ™ Neupro skin patch) are all medications that help normalize movement, but can worsen hallucinations.

The mildest form of hallucinations are vivid dreams that can be promoted by PD medications. Next are visual distortions and visual illusions that may occur often in low light or when sleepy. For example, a bathrobe on a hook could appear to be a person in robes. Outright hallucinations can also occur, such as seeing children playing, insects or imaginary animals. Sometimes there becomes a sense of a stranger living in the home, the so-called “phantom boarder” illusion.  Often people experiencing these illusions and distortions are aware that they are nothing more than medication side effects,  but at other times they can be perceived as alarmingly real.

Delusions are related to hallucinations. They are false beliefs that persist despite all evidence to the contrary.  Delusions may include forms of paranoia that people are out to do them harm. Once a delusion becomes persistent, it is difficult or impossible to use reason or facts to change that person's mind.

 

Read The Full Article
Are you a spouse, family member, friend or care partner of a person with Parkinson's disease or another movement disorder? This retreat is for YOU!

The Renew Retreat is a time to treat yourself and take care of yourself.

Did you know that care partners have a 63% higher mortality rate than non-care partners.  Taking care of yourself is not a luxury. It's a necessity for every care partner.  The Renew! Retreat is designed just for you.

Join us at the beautiful and relaxing Westward Look Resort & Spa in Tucson, AZ on September 17th and 18th for a unique kind of rest and relaxation -  activities, presentations and discussions focused on caregiver health and well-being. Enjoy interactive days filled with opportunities to learn, connect with other care partners and renew your energy. If you like, bring your love one with you, our PD Clubhouse will provide a special program of activities* designed just for their enjoyment.

To learn more, click on the above image
or visit the Renew! Care Partner Retreat page on our website.

Day 1
Movement Disorder Physician Discussion
Health Boundaries, Healthy You
Sleep & PD 
Legal Issues & PD – Elder Law Attorney
Exercise  – Yoga
Reception 
Day 2
Minding Your Mental Health
Neuropsychology News
Affinity Group Breakout
Individual Self-Care Plan
Living Well Celebration

* Activities for people with PD while the care partneris attending the retreat: Advocacy, Games, Exercise, Wellness
UPCOMING CONFERENCES
LEARN. LIVE. CONNECT.

RENEW! RETREAT

To register for any conference, please send an email to info@PMDAlliance.org or
call 800.256.0966.
Be sure to indicate which conference(s) you will be attending and its date.

 
July 23 - Learn. Live. Connect. Parkinson's  Conference. Show Low

August 19 - Learn. Live. Connect. Parkinson's Conference. Flagstaff

August 20 Live It Up! Community Education & Celebration. Prescott

September 17-18 - Renew! Retreat for Care Partners. Westward Look, Tucson (Includes daytime activities and programming for people with PD as well)

Every conference includes a presentation by doctors who are movement disorder specialists or medical providers. Some of the movement disorder specialists who partner with us for the conferences are Dr. Maria Christina Osipina, Dr. Virgilio Evidente, Dr. Padma Mahant, Dr. Johan Semanta, Dr. David Shprecher, Dr. Charles Alder, Dr. Katheryn Bradley, Dr. Scott Sherman, Dr. Tanya Lin, Dr. Cynthia Reed, Dr. Ming Jai Liu, and Dr. Shyamal Mehta. 

Visit our website and friend us on Facebook to learn about conferences near you. Some events require registration; many do not. Tell your friends and family to join our e-news and invite them to attend with you.  


RENEW RETREAT

Nearly everyone with PD has or will have a care partner. Care partners need support and care too! Our 
signature Renew!
 Retreat, September 17-18th  at the Westward Look Resort & Spa in Tucson, AZ, promises to honor, support and invigorate 
care partners,
 sending everyone home more relaxed, less stressed and feeling good.  
To learn more visit our website!

LIVING WELL  WITH PD

PMDAlliance's mantra is you first, then the disease. Knowing that you are more than your disease, we host monthly Get Out! casual dinners in Phoenix, Tucson and Prescott.  These events include a time to connect with new and old friends.  Get Out! events are about more than fun; they're based in science that demonstrates how important socializing is for aging brains.
CARE PARTNER CORNER
 
Parkinson's and other movement disorders are a team sport - offering equal opportunity to experience strain and fatigue.  As a part of our program development , we seek your input to design programs that not only meet your needs but enhance your ability to live life more fully.  
Please take a moment to 
click here
to complete the survey.

 
WE ARE GRATEFUL FOR OUR GENEROUS DONORS.  
WITH YOUR HELP WE PROVIDE SERVICES TO THOUSANDS
OF PEOPLE WITH PD & THEIR CARE PARTNERS.
Janet Benjamin
Lynne Boehne
Marjorie Crenshaw
Mike DeBoard
Heidi Parnell
Carolyn Quarnberg
Tammy Sanks
Vera Shury
Carol Smith
Bonnie Tang
In honor of Wayne & Helen Squires
Chuck & Carol Jones
Theodore & Thelma Montsma
Gary & Marsha Young

In memory of Howie Zeitz, MD
Carol & Chuck Jones
Gratitude is good for the soul. Research shows it enhances overall health and brain health.  PMDAlliance is so very grateful for the gifts of time, talent and treasure prople share with us every day.  We are in this together.

As part of the practice of gratitude, we offer opportunities to honor someone you care for - a care partner you treasure today or someone that has passed who you'd like to remember.  To submit a tribute please contact us at info@PMDAlliance.org
Want to attend an upcoming event?     View our Calendar here
SAVE THE DATE
 

Additional information related to 
details, logistics
and dates of events beyond September are available
on the calendar at www.PMDAlliance.org

 

MONTHLY GET OUT! DINNERS

 
GET OUT! West Phoenix
2nd Mondays, 4-6 PM
GET OUT! Prescott
4th Monday, 4-6 PM


NEW DATES & LOCATIONS

GET OUT! Tucson
1st Wednesday, 4-6 PM
GET OUT! East Phoenix
3rd Wednesday, 4-6 PM

 

  CONFERENCES & EVENTS

July 23rd
Learn. Live. Connect. Parkinson Conference
Show Low, AZ


August 19th
Learn. Live. Connect. Parkinson Conference
Flagstaff, AZ


August 20th
Live It Up! Community Educaton & Celebration
Prescott, AZ


September 17-18
Renew! Care Partner Retreat
A Special retreat for care partners,
including a separate activity-based program
held concurrently for people with PD

Tucson, AZ - Westward Look Resort

About PMDAlliance

 
 
PMDAlliance serves as a hub of information about activities occurring in your community. We offer direct support services, programs and events that enhance the daily lives of people with Parkinson disease and other movement disorders and their care partners. Our services assist others in building local community programs and offer opportunities to socialize and have fun!
 
PMDAlliance relies on the generosity of its program sponsors and individual donors to provide its many events and programs to the thousands of people across Arizona who benefit from them.

We direct 100% of donated funds to services for people in Arizona.  Like what we're doing?  Please consider a donation today.
 

Donate
Thank you to our sponsors for making our events possible!

We hope you like our newsletters. Please note: if you unsubscribe you will no longer receive updates about conferences and events near you. 
 
 

Parkinson & Movement Disorder Alliance
P.O. Box 36233, Tucson, AZ 85704
(800) 256-0966
www.PMDAlliance.org
 






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Parkinson & Movement Disorder Alliance · PO Box 36233 · Tucson, AZ 85704 · USA