Offering educational, social and interactive programs and events that enhance daily life for people with Parkinson disease and other movement disorders and their care partners.
Deep Dives. Living Well with PD, Care Partner Corner
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It's a Team Sport!
It’s likely not news to you that Parkinson disease is a team sport. By that we mean that no person with Parkinson's lives without the participation of others in their lives. Spouses, family members, adult children, relatives, friends, and healthcare providers are all a part of the everyday experience of living with PD and other movement disorders. Because of that, we consider the full team when planning our programs and services.
On the playing field, team members play different positions and see the game from their own perspective. So too for PD team members. That’s why we’ve designed several signature programs to help inform and coach team members so they’re better able to play together, coordinate their efforts, and care for themselves in the process.
Help us invite your family and friends to a special event created just for them! This year we’re kicking off a new program and we need your help in getting the word out. The Adult Children of People with PD Conference will occur May 19-20th at the Doubletree Suites in Phoenix, Arizona. The first of its kind in the country, this conference provides a much-needed opportunity for adult children, relatives, friends, colleagues and other non-spouse team members to hear about PD from experts, learn about various ways they can work together to support the individual with PD and each other. We expect siblings and family members from across the country, as well as locally, to join us. Talking about the various issues of PD can be daunting. Tell your adult children, family and friends about the conference and let us support them! To learn more click here.
You’re invited to lunch with a doctor – right at your dining room table. Staying true to our mission to reach people regardless of where they live, PMDAlliance is launching a monthly online Lunch with Docs. We’re bringing the expertise of our Physician Advisors to you in your own home. Read the article in this e-newsletter for more information, then join us on January 25th as we launch the series with a talk by David Shprecher, DO, and Movement Disorder Program Director at Banner Sun Health Research Institute.
We’re in Southern California for our next Renew! Retreat™. The first Renew! Retreat ™ was in Tucson in 2016. It was such a success that we’ll be offering it again this fall in Arizona. Plus - we were invited to host a Renew! Retreat™ in Southern California. Do you know people who live in California? Are you interested in a getaway weekend? This life-giving educational and interactive retreat happens in Irvine, California on March 25-26th. To learn more, click here.
PMDAlliance is offering 75+ programs and events this year so keep an eye on our newsletters and e-mails. Stay informed and ensure you don't miss out! Get involved. Be a part of the PMDAlliance community. Live fully!
Sarah Jones, MPA, MS Strategic Design
Lunch With Docs™
Every 4th Wednesday of the month, PMDAlliance will host a FREE Lunch With Docs™ from Noon - 1:00 PM, Arizona time. With varied topics and an array of physician experts, these informal discussions with movement disorder neurologists will provide a forum to learn, ask questions, interact and be part of a community, regardless of where you live.
This month join us for a conversation about Lewy Body Dementia and Parkinson's Dementia with David Shprecher, DO, MSci, Director of the Movement Disorders Center at Banner Sun Health Research Institute.
To learn more and access Lunch With Docs™ CLICK HERE
SOCIAL ISOLATION AND LONELINESS IMPACT HEALTH
Maria Christina Ospina, MD
Movement Disorder Neurologist PMDAlliance Advisor
Phoenix & Tucson AZ
Every week in clinic I see patients and care partners who feel isolated, lonely and at a loss about how to engage in social activities. The medication requirements, mobility challenges and non-motor issues can be overwhelming. As a result, I often see people forgetting to stay active socially, not just physically. A recent article in the New York Times laid out the risks of isolation. Click here to read the article.
As a physician who specializes in PD, this kind of isolation is potentially damaging to your health. PMDAlliance has many programs to engage in, all with a social component built in. The PMDAlliance website has a list of support groups and exercise programs that will help you remain a part of your community.
Each week commit to doing something social. This is part of the treatment plan for people with PD and care partners - Doctor's orders.
FROM APATHY TO ACTIVITY
By Judy Talley, MA Gerontology
PMDAlliance Program Director
Talk to someone living actively with Parkinson’s, and you may be surprised by how long it’s been since they were diagnosed. They’ll likely tell you that physical activity is as effective as some medications at combatting PD symptoms.
As one woman said, “Shortly after my diagnosis, I joined an exercise class. Other days I’m busy cooking and cleaning and spending time with my family. I may be retired, but daily exercise is my job now. Even when I don’t want to, I do it anyway. It’s a big factor in keeping my symptoms at bay.”
"Many questions remain about alpha-synuclein’s role in causing PD, but the details are becoming clearer. Among the discoveries, we are finding clues for potential PD therapies that target alpha-synuclein, some of which are already in the early stages of clinical trials." To read a full article on alpha-synuclein click here.
MAYO CLINIC SCOTTSDALE STUDY ON PD BIOMARKERS
By Charles Adler, MD, PhD
Professor, Consultant Dept of Neurology
May Clinic Hospital, Arizona
The Systemic Synuclein Sampling Study (S4) is an observational clinical study which aims to better understand the progression of Parkinson’s disease (PD) by measuring biomarkers. A biomarker is a substance or characteristic in our bodies that is associated with the presence of disease or that changes over time in a way that can be linked to the progression of disease.
Currently, one of the most promising biomarkers of PD is alpha-synuclein – a sticky protein that clumps up in the brains of people with Parkinson’s. Interestingly, alpha-synuclein can also be measured in many bodily fluids and tissues, giving researchers and clinicians a way to potentially monitor changes in the disease by tracking alpha-synuclein levels outside of the brain. The goal of S4 is to identify which biofluid(s) and/or tissue(s) may be best for measuring alpha-synuclein outside of the brain as a potential biomarker in people with PD.
S4 is an observational study, which means study participants will undergo numerous tests and assessments and provide biologic samples, but study participants will not receive an experimental drug or treatment.
This section includes conferences and events occurring during the next three months as well as special events. Every conference includes a presentation by a neurologist who is a movement disorder specialist or an expert medical provider. To see events beyond three months, visit our website, www.PMDAlliance.org
Lunch with Docs - Lewy Body Dementia & PD Dementia. January 25, 12-1pm
David Shprecher, DO Banner Sun Health Research Institute
Online. Click here to register.
Live It Up! Green Valley, AZ February 17 3-6pm
David Shprecher, DO, Banner Sun Health Research Institute
Arroyo Gardens. Click here to learn more.
Learn. Live. Connect. Prescott, AZ February 24
Sara Dhanani, MD, Banner Sun Health Research Institute
The Heights Church. Click here to learn more.
Lunch with Docs, Research March 22 12-1pm
Holly Shill, MD Barrow Neurological Institute
David Shprecher, Sun City Research Institute
Online Click here to register.
Renew! Retreat Irvine, CA, March 25-26
Echo Tan, MD, Cedars Sinai
Rita Gandhy, MD, Parkinson's Institute
Marriott Irvine. Click here to learn more.
Adult Children of People with PD Conference, May 19-20
Early Bird Registration now open.
David Shprecher, DO, Banner Sun Health Research Institute
Paarth Shah, MD Barrow Neurological Institute Fellow
Doubletree Suites Phoenix. Click here to learn more.
Visit our website and friend us on Facebook to learn about conferences near you. Some events require registration; many do not. Tell your friends and family to join our e-news and invite them to attend with you.
A great overview of PD!
CONSIDER MAKING A TAX DEDUCTIBLE DONATION.
SUPPORT PMDALLIANCE TODAY!
PMDAlliance is a nonprofit organization focused on providing services that help you learn, connect and live life beyond what you can imagine. Your donation helps support our 75+Learn. Live. Connect.™conference & Get Out!™events each year, this monthly e-newsletter, our information line, Renew! Retreat ™and more.
Donate once or monthly Make a gift donation in someone's honor. Every donation goes directly to providing current programming and generating new and innovative programs. To donate, visit our website by Clicking Here.
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EVERY TIME YOU MAKE A PURCHASE. IT'S EASY!
Before your place your next order on Amazon, register for Amazon Smile. Use the Amazon Smile site each time you make a purchase and they'll make a donation to PMDAlliance. It costs you NOTHING!
Click on the image or click below and register today to help support the work of PMDAlliance!
Periodically, PMDAlliance offers free special events in various locales that explore and inform about specific topics of interest, including opportunities to hear in-depth discussions of medications and procedures, and talks by patients who share their experiences. These events are publicized and always listed on our calendar (click here to view our calendar).
LIVING WELL WITH PD
PMDAlliance's mantra is you first, then the disease. Knowing that you are more than your disease, our monthly Get Out! casual dinners in Phoenix, Tucson and Prescott include a time to connect with new and old friends. Get Out! events are more than fun; they're based in science demonstrating how important socializing is for aging brains. And they're free!
CARE PARTNER CORNER
About one in 10 caregivers looks after a spouse, according to a 2015 joint report by the AARP and the National Alliance for Caregiving. Tough Love, by Paul Wynn, recognizes that succeeding as a spousal caregiver means knowing when to ask for help, finding time for yourself, and making peace with your partner Click here to read the article.
PMDAlliance serves as a hub of information about activities occurring in your community. We offer direct support services, programs and events that enhance the daily lives of people with Parkinson disease and other movement disorders and their care partners. Our services assist others in building local community programs and offer opportunities to socialize and have fun!
PMDAlliance relies on the generosity of its program sponsors and individual donors to provide its many events and programs to the thousands of people across Arizona who benefit from them.
We direct 100% of donated funds to services for people in Arizona. If you like what we're doing, please consider a donation today.
Thank you to our annual sponsors for making our events possible!
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Parkinson & Movement Disorder Alliance
P.O. Box 36233, Tucson, AZ 85704