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Offering educational, social, and interactive programs and events that enhance daily life for people with Parkinson disease and other movement disorders and their care partners.
www.PMDAlliance.org      800.256.0966
IN THIS E-NEWSLETTER
  1. Parkinson's & Movement Disorders Ecosystem
  2. Lunch With Docs
  3. Movement Disorder Specialists
  4. Connect! Information to Share with you Adult Children
  5. Building A Better You Video
  6. Huntington's Disease
  7. Upcoming Conferences and Events
  8. Consider a Donation
  9. Amazon Smile: Donate With Every Purchase
  10. Deep Dives. Living Well with PD. Care Partner Corner
  11. Save The Date
The Parkinson's Ecosystem!
 
I'm guessing that you probably haven't heard about the Parkinson or Movement Disorder ecosystem, probably because it isn't a term per se. It's the framework that PMDAlliance developed and uses when building our programs, our website, and our events. At its core, it expresses our dedication to ensuring that everyone impacted by Parkinson's has the information and support they need.

An ecosystem is defined as a complex network or interconnected system. We believe every person living with Parkinson's disease, Huntington's disease, MDA, PSP, and other movement disorders is part of a complex network of interconnected support.  While the person living with Parkinson's or another movement disorder is at the center of their ecosystem, living well despite the disease includes many other people.  To take a look at the PMDAlliance Movement Disorder ecosystem click here.

This newsletter is dedicated to increasing awareness about some components of the Parkinson's or other movement disorders ecosystem for various members of the ecosystem, as well as the support and services available them.

PMDAlliance offers 75+ programs and events this year, so keep an eye on our newsletters and e-mails. Stay informed and ensure you don't miss out!  Get involved.  Be part of the PMDAlliance community.  We're on this journey with you.

Live fully!

Sarah Jones, MPA, MS Strategic Design
Executive Director
Lunch With Docs™  APRIL 26, 2017
 
Every 4th Wednesday of the month, PMDAlliance hosts a FREE brown bag Lunch With Docs™ from Noon - 1:00 PM,  Arizona time (currently MST). With varied topics discussed by an array of physician experts, these informal conversations with movement disorder neurologists will provide a forum for you to learn, ask questions, interact and be part of a community, regardless of where you live.  

This month, join us April 26th for a conversation with Cynthia Reed, MD to learn about digestion and constipation issues in PD as well as practical tips to help ease the issues.

If you missed March's Lunch with Docs™, you can watch the discussion on our PMDAlliance YouTube! Channel,  Click here 

 To learn more and access live 
Lunch With Docs™ 

Movement Disorder Specialist

Do you know the difference between a general neurologist and a movement disorder specialist?

General neurologists treat more than 100 neurological conditions. Movement disorder specialists are neurologists who have completed an additional course of education beyond general neurology and training specifically to treat patients with diagnoses of Parkinson's and Huntington's, essential tremor, dystonia, and various Parkinsonisms. They keep abreast of new and potential treatments and medications and can address each patient's care needs with specialized expertise. 

PMDAlliance encourages every person with a movement disorder to see a neurologist who specialized in movement disorders, at least annually.  If you are looking for a movement disorder neurologist near you, we maintain a list of our Movement Disorder Neurologist advisors on our website.  Click the button below to visit the website.

Click to See A List of Movement Disorder Specialists
Think your kids are too busy to attend a conference designed just for them?  Think they wouldn't want to go?  You may want to think again.  Here's what we've heard from people who have already registered:
 
"I had no idea where to go to ask my questions. I google everything but don't know if it's reliable information. I don't want to burden my mom and dad. They're already stressed. I'm so excited to be coming to this conference."  - Jan, 38

"My two brothers and I are coming together. I'm flying in Friday and we'll spend the weekend together. I think this will help us make our visits and holidays even more special because we'll understand more about my mom."  - Mary, 44

"I keep trying to figure out how to help and have no idea. I know my parents don't think I have time. What they don't know is that I think about my dad and his Parkinson's ALL the time."  - John. 52

"My dad is only 57. I wonder what this mean for me. I'm looking forward to a safe space to talk."  - Cindy, 27
Click Here to Learn More About The Conference
BUILDING A BETTER YOU
Last month we gathered with more than 100 people with Parkinson disease and their care partners for a Renew! Retreat in Irvine.  In addition to sharing with others who truly understand, participants heard from several movement disorder physicians.  This video is part 1 of Dr. Mindy Bixby's talk, "Building A Better You".  
Stay up to date with the video library by visiting and subscribing to our PMDAlliance You!Tube channel.
Visit PMDAlliance's You!Tube Channel
 
HUNTINGTON'S DISEASE
Do you know someone with Huntington's disease (HD)?  Please share this e-news with them and ask them to reach out to us at info@PMDAlliance.org or (800) 256-0966.

In May and June, PMDAlliance will be hosting several Spotlights in HD.  If you are impacted by HD or know someone with HD, please share this e-news with them.  

To learn more and to join the HD mailing list CLICK HERE.
UPCOMING CONFERENCES & EVENTS
 
This section includes conferences and events occurring during the next three months, as well as special events. Every conference includes a presentation by a neurologist who is a movement disorder specialist or an expert medical provider. To see events beyond three months, visit our website, www.PMDAlliance.org

April 15 - Mayo Clinic Parkinson's Conference, Phoenix, AZ
Half-day Learn. Live. Connect. Conference with 3 movement disorder specialists and faculty members at Mayo Clinic, Scottsdale.  
Charles Adler, MD, PhD, Shyamal Mehta, MD, PhD, Erika Driver-Dunkley, MD
Click Here to Register. Space is limited.

April 26 - Lunch with Docs, The Gut, Digestion, and Keeping It Moving. Online
Noon-1pm, Arizona time
Cynthia Reed, MD
Online  Click here to join.

May 12 - Spotlight on Cognition, Sun City Arizona
Banner Boswell Medical 1Center, 2-4pm
Beyond Motor Symptoms - David Shprecher, DO, MSCi
Visit our website under events to learn more.

May 19-20 - Adult Children of People with PD Conference, Phoenix, AZ
Early Bird Registration now open
Maria Christina Ospina, MD, Movement Disorder Specialist
Paarth Shah, MD Barrow Neurological Institute Fellow
Doubletree Suites Phoenix.  Click here to learn more.

Get Out! Events
Tucson, first Wednesday of each month
Phoenix West/North, second Monday of each month
Phoenix East/South, third Wednesday of each month
Prescott, fourth Monday of each month
Click here to view the calendar for details.

Visit our website and friend us on Facebook to learn about conferences near you. Some events require registration; many do not. Tell your friends and family to join our e-news and invite them to attend events with you.  
CONSIDER MAKING A TAX DEDUCTIBLE DONATION.
SUPPORT PMDALLIANCE TODAY!  

PMDAlliance is a nonprofit organization focused on providing services that help you learn, live life beyond what you can imagine, and connect with community and resources. Your donation helps support our 75+ Learn. Live. Connect.™ conferences & Get Out!™events each year, this monthly e-newsletter, our information line, Renew! Retreat™, and more.
 
Donate once or monthly. Make a gift donation in someone's honor.  Every donation goes directly to providing current programming and generating new and innovative programs.  

To donate, visit our website by Clicking Here.
TELL AMAZON TO DONATE TO PMDALLIANCE
EVERY TIME YOU MAKE A PURCHASE. IT'S EASY!


Before your place your next order on Amazon, register for Amazon Smile. Use the Amazon Smile site each time you make a purchase and they'll make a donation to PMDAlliance. It costs you NOTHING!


Click on the image or click below and register today to help support the work of PMDAlliance!


 
 
DEEP DIVES

Periodically, PMDAlliance offers free special events in various locales that explore and inform about specific topics of interest, including opportunities to hear in-depth discussions of medications and procedures, and talks by patients who share their experiences. These events are publicized and always listed on our calendar (click here to view our calendar).
 

LIVING WELL  WITH PD

PMDAlliance's mantra is you first, then the disease. Knowing that you are more than your disease, our monthly Get Out! casual dinners in Phoenix, Tucson and Prescott include a time to connect with new and old friends.  Get Out! events are more than fun; they're based in science demonstrating how important socializing is for aging brains. And they're free!

CARE PARTNER CORNER
 
About one in 10 caregivers looks after a spouse, according to a 2015 joint report by the AARP and the National Alliance for Caregiving. Tough Love, by Paul Wynn, recognizes that succeeding as a spousal caregiver means knowing when to ask for help, finding time for yourself, and making peace with your partner Click here to read the article.
Want to attend an upcoming event?
Click here to view our calendar.
Donate Now. Help Keep PMDAlliance Strong!
 
 
 
PMDAlliance serves as a hub of information about activities occurring in your community. We offer direct support services, programs and events that enhance the daily lives of people with Parkinson disease and other movement disorders, and their care partners. Our services assist others in building local community programs and offer opportunities to socialize and have fun!
 
PMDAlliance relies on the generosity of its program sponsors and individual donors to provide its many events and programs to the thousands of people across Arizona who benefit from them.

We direct 100% of donated funds to services for people in Arizona.  If you like what we're doing, please consider a donation today.
 
 

Donate
Thank you to our annual sponsors for making our events possible!

We hope you like our newsletters.
Please note:
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Parkinson & Movement Disorder Alliance
P.O. Box 36233, Tucson, AZ 85704
(800) 256-0966
www.PMDAlliance.org
 






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Parkinson & Movement Disorder Alliance · PO Box 36233 · Tucson, AZ 85704 · USA