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Offering educational, social and interactive programs and events that enhance daily life for people with Parkinson disease and other movement disorders and their care partners.
www.PMDAlliance.org      800.256.0966
IN THIS E-NEWSLETTER
  1.  Amazon Smile!
  2. A Message from PMDAlliance
  3. Renew! Retreat - Early Bird Registration
  4. Care Partner Exercise
  5. Move It!™  Streaming Exercise Club
  6. The Doctor Is In  
  7. Help Us Serve You Better
  8. Upcoming Conferences & Events
  9. Donor Appreciation & Memorial
  10. Save the Date Listing
  11. PD Resources
DO YOU SHOP ON AMAZON? 

Now every time you shop on Amazon, Amazon will make a donation to PMDAlliance.  It's that easy.  

All you need to do is click here and register, then use the Amazon Smile site each time you make a purchase.  There is no additional cost to you!

Click on the image below and register today to help support the work of PMDAlliance!



 
PMDAlliance at the World Parkinson Congress!
The World Parkinson Congress is being held in Portland this month.  PMDAlliance will be there sharing with the more than 4000 attendees the innovative services happening right here in Arizona!   We applied to share information about our services. now we're excited to tell you that four of our programs were chosen! Our Get Out!, Move It!, Refresh! and Inside Scoop! programs were selected for poster presentations. 

In addition, the WPC invites the top 25% of all submissions to participate in an intensive guided poster tour.  Our Move It! and Inside Scoop! programs were selected! We'll be sending out a special e-news with an in-depth look at each program over the next couple weeks and share the posters with you.  We'll also be hosting a complimentary booth provided by the WPC - booth #4  in Partners Alley.  

Core to our mission is ensuring broad access to our services and information, regardless of where you live.  After a couple years of piloting and researching virtual technologies, we're proud to be a trailblazer in offering high quality, online services that extend beyond webinars.   

We're honored to be a partner of the World Parkinson Congress. The WPC is dedicated to people with PD and care partners and makes their conference available for people who cannot attend.  Judy and I will attend a meeting of more than 80 PD Program Directors worldwide to talk about best practice in program delivery. Click here to take a look at the webcasts from the last WPC.

To celebrate the WPC we're offering a special promotion for Move It! Be sure to read the article in this enews for more information.  

Get involved.  Be a part of our community.  Live fully! 

Sarah Jones, MPA, MS Strategic Design
Executive Director
LAST CALL!  RENEW! RETREAT
You won't want to miss it!
To View A More Detailed Agenda, Click Here

Walking with Polesjudy headshot

The Benefits of Having 2 More Feet

By Judy Talley, MA Gerontology

If you’re already familiar with Nordic walking, you’ll immediately know that pole walking is very similar. Poles have been around for a long time. Imagine a craggy alpine trail with someone wearing lederhosen, knee socks and hiking boots as they use walking poles to more safely traverse a sunlit and rocky trail. In Arizona, you’re more likely to find hikers using poles to steady themselves on a narrow trail, or rock hop over the creek. While people of every age walk with poles, seniors and individuals with balance and mobility challenges find pole walking offers them improved stability, stamina, and the confidence to keep moving.

Click Here to Read More
Have you visited our YouTube Channel yet?  If not be sure to visit and subscribe.  With educational and informational videos available and add more regularly!
 
THE DOCTOR IS IN
Maria Christina Ospina, MD
 

Decisions can become complicated as Parkinson disease progresses. It is often helpful to have conversations about what level of care a person wants and does not want well in advance of facing the decision.  One of the decisions a person might face is whether to have a feeding tube.  While feeding tubes were once the norm, that is not necessarily the case anymore. 

A recent article discusses the new trends in feeding tubes.  At all times these are personal decisions that should be made in partnership with your care partner, family and physician.  Because Parkinson disease is a progressive disease, it's never too early to have these conversations and make plans. Talking together will ease the process for you and your care partner. As in all things in life, the more you plan ahead, the easier these transitions will be. To read a recent article on this topic click here.

ITS LIVE!
 Join a Parkinson's Based Exercise Club!

SPECIAL RATE - $10 PER MONTH FOR THE FIRST 3 MONTHS

 

PMDAlliance's Move It!™exercise clubs provide group-based exercise for people with PD who live in underserved communities, may be homebound, or are part-time residents.  Club members access a Parkinson's based exercise class three times per week conducted live, in real time online. They also have the opportunity to participate in a facilitated discussion group after class once per week.

Unlike exercising to a DVD, which lacks community engagement, socialization or feedback and relies entirely on self-motivation, our Move It!™clubs offer active, real-time exercise using internet technology. People with PD interact with each other, develop a sense of community and participate in an exercise program that is specific to their needs.

We let you know that you can count on us to be a resource of information.  Our website now has a list of Certified Elder Law Attorneys in Arizona available for you.  Elder law attorneys can help you plan advanced directives, wills, health care power of attorneys and more.  It is never too early to plan for the future. Planning works best when it's done with calm attention rather than during a crisis, so now might be the time!

Please visit our site to find Elder Law Attorneys, support groups and exercise near you!  Click here to take a look at the list. 
UPCOMING EVENTS
LEARN. LIVE. CONNECT.

LIVE IT UP!
RENEW! RETREAT

To register for any conference, please send an email to info@PMDAlliance.org or call 800.256.0966. Be sure to indicate which conference(s) you'll be attending and the date(s).

Every conference includes a presentation by a neurologist who is a  movement disorder specialist or an expert medical provider. Some of the movement disorder specialists who partner with us for the conferences are Dr. Maria Christina Osipina, Dr. Virgilio Evidente, Dr. Padma Mahant, Dr. Johan Semanta, Dr. David Shprecher, Dr. Charles Alder, Dr. Katheryn Bradley, Dr. Scott Sherman, Dr. Tanya Lin, Dr. Cynthia Reed, Dr. Ming Jai Liu, and Dr. Shyamal Mehta. 

September 17-18 - Renew! Retreat for Care Partners. Westward Look, Tucson (also includes daytime activities and programming for people with PD)

Visit our website and friend us on Facebook to learn about conferences near you. Some events require registration; many do not. Tell your friends and family to join our e-news and invite them to attend with you.  

RENEW RETREAT

It's time away for both of you - or one of you! Our 
signature Renew!
 Retreat, September 17-18th,  at the Westward Look Resort & Spa in Tucson, AZ, promises to honor, support and invigorate,
 sending everyone home more relaxed, less stressed and feeling good.
 You won't want to miss it!  To learn more click here!

LIVING WELL  WITH PD

PMDAlliance's mantra is you first, then the disease. Knowing that you are more than your disease, our monthly Get Out! casual dinners in Phoenix, Tucson and Prescott, include a time to connect with new and old friends.  Get Out! events are more than fun; they're based in science demonstrating how important socializing is for aging brains.
CARE PARTNER CORNER
 
About one in 10 caregivers looks after a spouse, according to a 2015 joint report by the AARP and the National Alliance for Caregiving.Tough Love by Paul Wynn, recognizes that succeeding as a spousal caregiver means knowing when to ask for help, finding time for yourself, and making peace with your partner Click here to read the article.
Want to attend an upcoming event?  View our calendar here.
SAVE THE DATE
 

Additional information related to 
details, logistics
and dates of events beyond September are available
on the calendar at www.PMDAlliance.org

 

MONTHLY GET OUT! DINNERS

 
GET OUT! West Phoenix
2nd Mondays, 4-6 PM

GET OUT! Prescott
4th Monday, 4-6 PM


NEW DATES & LOCATIONS

GET OUT! Tucson
1st Wednesday, 4-6 PM

GET OUT! East Phoenix
3rd Wednesday, 4-6 PM

 

  CONFERENCES & EVENTS

September 17-18
Renew! Care Partner Retreat
A special retreat for care partners,
and a separate activity-based program
held concurrently for people with PD and/or dystonia

Tucson, AZ - Westward Look Resort

About PMDAlliance

 
 
PMDAlliance serves as a hub of information about activities occurring in your community. We offer direct support services, programs and events that enhance the daily lives of people with Parkinson disease and other movement disorders and their care partners. Our services assist others in building local community programs and offer opportunities to socialize and have fun!
 
PMDAlliance relies on the generosity of its program sponsors and individual donors to provide its many events and programs to the thousands of people across Arizona who benefit from them.

We direct 100% of donated funds to services for people in Arizona.  If you like what we're doing, please consider a donation today.
 
 

Donate
Thank you to our sponsors for making our events possible!
Special thanks to Releventure for designing our posters for the WPC!

We hope you like our newsletters. Please note: if you unsubscribe you will no longer receive updates about conferences and events near you. 
 
 

Parkinson & Movement Disorder Alliance
P.O. Box 36233, Tucson, AZ 85704
(800) 256-0966
www.PMDAlliance.org
 






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Parkinson & Movement Disorder Alliance · PO Box 36233 · Tucson, AZ 85704 · USA