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February 2017 Newsletter
From Our Director
Pat Thalhammer, Past Coalition President, recently wrote “While your Parkinson’s journey is unique, you don’t have to make it alone. Ask questions and share your experience about managing PD and the physical and emotional issue of daily life. Learn from others!”

The New Mexico Parkinson’s Coalition exists for one reason – you. Our dedicated community leaders manage support groups and organize educational events, social gatherings, and exercise classes designed to help you travel your PD journey.  The entire Coalition board volunteers their time to build up the PD community in Albuquerque, on the Westside, in Santa Fe and around the state.  Everything we do is designed to empower and inform you and we encourage you to be active by participating in one of the physical activities taught by instructors trained in PD. 

If you’re interested in getting more involved with the Coalition as a volunteer please send me an email.  We need help with grant writing, data entry, and events! Also, a warm thanks to all of our generous donors who keep us on the road to a better life for people with Parkinson’s, their care partners, and families.

Keep well,
Maureen Simmons, M.A., CFRE
Executive Director msimmons@nmparkinson.org
Breaking News
Experimental treatment for Parkinson's symptoms shows early promise.  To learn more click HERE.
Addex Wins $835K MJFF Grant to Develop TrkB PAMs for Parkinson's Disease. To learn more click HERE.
Scientists use sharks to BITE BACK at Alzheimer’s and Parkinson’s disease To learn more click HERE.
A natural compound can block the formation of toxins associated with Parkinson’s Disease. To learn more click HERE.
Save The Dates
2017 “Knowledge is Power” Conference 
HERE.
New Signature Event - Partnering for Parkinson’s Barn Dance HERE.
Special Education Series: Empower Parkinson’s
Interact with Parkinson’s experts in a free series of events that will build the confidence and knowledge you need to make decisions about your healthcare. Presented by Albuquerque and Westside Support Groups The first in this series will be held on Saturday, February 18 at two times and locations 10:30-noon, St. Paul United Church of Christ, 1101 Golf Course Rd. SE, Rio Rancho 1-2:30, Highland Senior Center, 131 Monroe NE, Albuquerque.

The speaker is Matt Wolff from the Parkinson’s Advocate Program in Chicago. As a Parkinson’s Advocate, Mr. Wolff gives personalized information, support and coaching to his clients whether newly diagnosed or living with Parkinson’s for many years. At the presentation he’ll explain how to sign up for this free service and what it can do for you. Since space is limited, an RSVP is required. Please call Pat at 259-7130 or the Coalition at 219-5065.
Ask The Doctor
Sarah Pirio Richardson, M.D. Director, Parkinson Disease and Movement Disorder Program Director, Noninvasive Neurostimulation Lab Associate Professor with Tenure University of New Mexico Department of Neurology Health Sciences Center Albuquerque, NM.
1.  What are the most common PD misconceptions of newly diagnosed patients?
Understandably there is a lot of worry about what the future will bring when someone is newly diagnosed. One of the most common concerns after diagnosis is whether medications, specifically levodopa—the active medication in Sinemet®—might be harmful. This concern came from a laboratory study in brain cells that showed potential harm; however, after many years of study, this has not been proven. We do know that levodopa can significantly improve quality of life and that the decision to start medications should really take into account quality of life and impairment in quality of life.

2.  At what stage of PD might surgery be an option?
Deep brain stimulation is the currently available option for surgical treatment of Parkinson disease as approved by the FDA. The exact timing of when to consider surgery depends on several factors more so than any specific stage of PD. Factors such as age, duration of PD, how well a patient responds to medications, complications such as fluctuations (how many times in a day someone is on or off) or whether or not someone has dyskinesias (wiggly, involuntary movements), all play a role in whether someone might be a candidate for surgery. It’s very important to work with your neurologist on whether the symptoms that bother you most can be addressed by surgery or whether the worrisome symptoms might not be helped (or even worsened) by surgery.
"Ask the Doctor" features answers by Dr. Sarah Pirio Richardson, Advisory Board member, to questions you may have regarding movement disorders. If you would like to submit a question for consideration, email coalition@nmparkinson.org.
Care Partners: supporting someone living with Parkinson's
For information and support resources click HERE.
Our New Mexico Resources
Note: The links provided here are NOT an endorsement by NMPC for any one physician, healthcare provider, organization, service or program. They are provided for information purposes only.
Find Education meeting descriptions, dates, times and locations HERE.
Find a Support Group for you and your family HERE.
Find Wellness Class descriptions, dates, times and locations HERE.
Find a Neurologist HERE.
Join Us - Volunteer HERE.
Young Onset Diagnosis HERE.
Please help us help those living with Parkinson's by making a donation today.  Thank you!
Make A Donation NOW.
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Copyright © 2017 New Mexico Parkinson's Coalition,
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Our mailing address is:
P.O. Box 35091, Albuquerque, NM 87176


(505) 219-5065

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NM Parkinson's Disease Coalition · PO Box 35091 · Albuquerque, NM 87176 · USA

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