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Irish Skin Foundation Newsletter, Autumn 2015
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Newsletter, Autumn 2015
It’s been a very busy few months for the ISF, with our Family Fun Day, hidradenitis suppurativa (HS)actinic keratosis (AK), eczema “Starting from Scratch” and #SaySomething2015  psoriasis awareness campaigns all jammed into Autumn! 

In this newsletter Aisling O’Leary and and Michael O'Sullivan share their stories about having eczema, and Jeannette Brazel writes about being a parent of a teen with eczema and the ISF asks the government to drop rates of VAT on moisturisers.  

Barry McGrath tells us about his struggle with HS, how he got help and how you can talk to your GP about this rare and challenging condition. 
 

 
Our #SaySomething campaign for World Psoriasis Day (29 October) encourages people with psoriasis to really express their feelings to their GPs about their treatment. Watch the campaign video, the health snaps about aspects of psoriasis and psoriatic arthritis and a very special video, created by a brave little girl called Pearl especially for the ISF, titled "I'm beautiful with psoriasis."

You can show your support for the ISF by voting for our entry into the Better Together Video Competition or by making a donation to support our work. You can see all of our news here.  

Please feel free to get in touch about any item in this newsletter

e: info@irishskinfoundation.ie
t: (01) 716 6299 / 486 6280
World Psoriasis Day

World Psoriasis Day, October 29th, is an opportunity to put psoriasis at the top of the global health agenda. The Irish Skin Foundation marked the day with it's #SaySomething2015 campaign and advocacy for improved services. Read More


Life Stories

"Through the internet and social media, I have been able to establish contact with other HS sufferers in Ireland and abroad and no longer feel so alone and isolated." Read more 
from Barry’s Story - Living with Hidradenitis Suppurativa (HS)


"I couldn't complain because before my eyes my skin was transforming, I was able to see my own real skin eventually" Read more from Aisling’s Story – living with eczema.

"During the summer, I used to wear long sleeved tops and long pants to just cover up my eczema and to hide it from everyone so that they would not be looking at me and calling me names." 
Read more from Michael's story - growing up with eczema.
Awareness Campaigns

- “Starting From Scratch” guides for adults and kids with eczema launched Read More

- ISF shines a light on little known and misunderstood skin disease Hidradenitis Suppurativa (HS)
Read More

- Farmers, outdoor workers warned of common skin condition Actinic Keratosis (AK) Read More


 
Better Together Video Competition
 
We were so excited by the video footage of this year’s Family Fun Day at Barretstown that we decided to enter it in a competition which could win €2000 for the ISF!

You, your friends and family members can vote for our video once a day, right up until 5pm on 20th November, so please show your support! You can view and vote for our video here


 
Family Fun Day at Barretstown
 
Now in it's third year, the ISF's Family Fun Day for children with skin conditions took place on Saturday August 29th at Barretstown in Co, Kildare. See the full gallery of photos from the day, and watch a video following one family's fun-filled day!
Advocacy

ISF asks government to reduce VAT rates on moisturisers

Eczema in adults is more than an uncomfortable, itchy disease. It can also be a serious financial burden for the estimated 1 in 20 of Irish adults who have the most common form of the condition, atopic dermatitis.

“Medical cards don’t cover the full spectrum of treatments for eczema." according to David McMahon, Head of Advocacy with the Irish Skin Foundation (ISF). Read More


Dermatology News

Temple Street appoints consultant dermatologist

The Irish Skin Foundation has welcomed the appointment of a consultant dermatologist at Temple Street – it is understood that the post will be filled during the last quarter of 2015. Read More
 
Family Matters

The parental experience of eczema


ISF's parent advocate and mum of a 14 year old with eczema, Jeannette Brazel discusses her personal eczema journey and how treatment of the condition has changed in the past 14 years. Read More


Research

Reports from 'The Future of Dermatology' conference at The Charles Institute

The skin: a complex and magical organ

New developments in psoriasis therapy: Professor Peter van de Kerkhof

Role of the skin barrier in atopic dermatitis: Prof. Alan Irvine

Join the Irish Skin Foundation

There are a number of ways you can join the ISF and support our work

  • Register with us to keep up to date on events – if we know who you are, we can contact you with news and information

  • Organise an event, participate in a challenge and fundraise to support our work.

  • Share your life story – these stories will allow us to put people with similar problems in touch with one another and will encourage others to come forward.

  • Make a donation – help the ISF to help people with skin diseases, raise awareness, influence government policy and improve quality of life for all skin patients.

  • Volunteer your time – contact helenhadden@irishskinfoundation.ie

Support & Activity Groups 

What are support and activity groups for?

Support and activity groups can be an important part in helping people learn more about their skin condition, meet other people in similar circumstances, and a way to organise social activities. 

The Irish Skin Foundation is encouraging people with all types of skin condition to form, get involved in or to join a Support and Activity group - wherever you are in the country. 

We’d like to help you set up or join a group in your area

Support and Activity groups aim to improve the quality of life of someone with a skin condition while offering opportunities to organise social, outdoor or interest-based activities.

They also help people to learn, provide a safe place to come for support, and sharing of information. More information here or feel free to get in touch directly with us.

Whatever way you would like to get involved with us please get in touch, we would love to hear from you. 

You can email info@irishskinfoundation.ie or call us on (01) 716 6299 or 486 6280.
Copyright © 2015 Irish Skin Foundation, All rights reserved.

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