Thank you!
The International Alliance for Pediatric Stroke (IAPS) would like to thank everyone who has added their child’s story to the World Map on the United 4 Pediatric Stroke website. We are continuing the campaign until the end of May, so don't forget to check out our My Stroke Story campaign, add a Twibbon to your social media profiles, and see the information in this special edition newsletter for some other great opportunities to make a difference.
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An opportunity to share your experience on treatment decisions after your child’s stroke.
 The American Heart Association (AHA) and Patient Centered Outcomes Research Institute (PCORI) offer you the opportunity to play a key role in influencing topics for future scientific research in heart disease and stroke. If your submission is selected, you could win $1,000.
You are invited to share your experience, the decisions made in determining your child’s treatment plans, and the factors that influenced those decisions. This will allow them to guide research and lead to better care tailored to the specific needs of patients. How did those decisions impact your quality of life or your child’s quality of life? Here is your chance to share your experience with limited therapy visits due to insurance constraints. Are there therapies that you would like to use for your child but insurance won’t cover any of the expense because they are “experimental” in children? How has having a child who suffered a stroke impacted your family unit and siblings? What decisional dilemmas have you faced?
All submissions must be received by June 8, 2016.
Please take this important challenge and share your insights. Your story matters.
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The Child Neurology Foundation (CNF) wants to hear from you!
 The CNF website serves as an educational portal for patients and caregivers. They are looking to improve their website in order to better serve the child neurology community. The short survey they designed is specifically for parents, caregivers, and advocates and is intended to provide valuable data that will assist them in this endeavor.
Please follow this link to complete the 12-question survey:
https://www.surveymonkey.com/r/ChildNeurologyFoundationCaregiverAdvocateWebsiteSurvey
You are also encouraged you to share the link via your group or advocacy organization's social media platforms!
Click here for more information about the Child Neurology Foundation. The link will be open through June 13th.
As a side note, the section for Stroke in Children has some great information provided by the International Alliance for Pediatric Stroke board member, Dr. Adam Kirton, as well as some other resources and family stories. Please check it out if you haven’t seen it yet!
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