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Max Appeal Ezine July 2016 
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Max Appeal E-Zine
 July 2016
Events, News & Information
We hope you enjoy seeing what events and fundraisers are coming up in July and future months and also what has been happening in the last couple of months.

We also  like to keep you updated with important news and to remind you what Max Appeal can offer you.

If you do have any comments or queries, please email us at info@maxappeal.org.uk.
  • Forthcoming events & fundraisers in July and beyond!
  • News & Research
  • Thank you
  • Achievements
  • Donate
  • How to order Consensus documents
  • Change of contact details
Forthcoming events and Fundraising ideas
Great North Run
11th September 2016
 
CALLING ALL RUNNERS !!!
12 PLACES LEFT - WE NEED TO FILL THES
E

Max Appeal has secured a Bronze + package for the Great North Run 2016, guaranteeing 35 charity places our most ever and a marquee. Email paul@maxappeal.org.uk for an entry form. 
Click here for more info:  

https://www.maxappeal.org.uk
/events/content.asp?ms=5&ei=164
 
Yorkshire Three Peaks Challenge
23rd July 2016 
Mark Tripp, Debbie Payne, Lee & Terri Morgan, Chris Meldrum, Simon Lonsdale, Steve Robinson, Mike & Maria Harvey-Ascroft, Darren Daniel and Suzanne Starkey ............ We will be ably led by our guide Martin Barter 

On Saturday 23rd July 2016 Team Max Appeal will be taking on the Yorkshire Three Peaks challenge to fundraise for Max Appeal and to help raise awareness of 22q11 Deletion Syndrome. 

Full Story: https://www.maxappeal.org.uk/
events/content.asp?ms=5&ei=173

Just Giving Page:
https://www.justgiving.com/mark-tripp1
10th Biennial International 22q11.2 Conference-Sirmione, Italy
20th July 2016 to Friday 22nd July 2016

Sponsored for the first time by the 22q11.2 Society and entitled '22q – Back to the Future', the 2016 biennial meeting harkens back to the inaugural 1998 retreat conference nestled in the hills above Strasbourg, France. Featuring a mix of outstanding invited speakers and selected abstracts, presenters will include top scientists and healthcare providers from around the globe. Hotel Acquaviva will be the amazing venue for this all-inclusive resort meeting on the stunning banks of Lake Garda with easy access by plane from Milan, Venice, or Verona and local transport by train, car, taxi or bus. 

Full details, please click link below: 
http://www.maxappeal.org.uk/news/content.asp?ni=343
Have a Brew for 22Q!
Look out for more "Have a Brew for 22Q" events near you.
 
All of the "Have a Brew for 22Q" events can be found here:
https://www.maxappeal.org.uk/events/

Or why not hold your own?

With an estimated 35,000 people, who are living with 22Q in the UK, you can do something to help and have a great time with friends and family.
Put the kettle on....Get together, invite all your friends and family, set the date, put the kettle on and get the cakes in the oven. It's as simple as that. 
Free Tea Party PackHave a Brew pack includes 6 balloons, 6 cake toppers, A3 poster, bunting and money box. 
To register your event and request your free pack please email:  steph@maxappeal.org.uk with your name & address. 
For further information please go to http://www.maxappeal.org.uk/news/content.asp?ni=227
The Colourthon Events
2nd July 2016
The Colourthon events are staged in and around Chalkwell Park in Southend by Southend Round Table as a fundraising initiative for various registered charities, full information is available from our website
http://www.colourthon.org.

For full story please click here:
https://www.maxappeal.org.uk/
events/content.asp?ms=5&ei=186
Day on the Beach, Scarborough
24th July 2016
 The annual Scarborough day on the Beach meet up will be on Sunday 24th July this year. This will be the 5th year of our meet up and is open to all Max Appeal members new and old. It is a very friendly day so please come along if you are free. We shall meet up on the North Beach, more details to follow nearer the time.
https://www.maxappeal.org.uk/events/content.asp?ms=5&ei=194
Prudential Ride London
30th July 2016

Entries to the 2016 Prudential RideLondon-Surrey 100 Peloton Relay are now open! This team challenge is open to UK-based businesses and charities. 

The Peloton Relay requires a team of four riders representing the same organisation or charity.


For further details:
https://www.maxappeal.org.uk/
events/content.asp?ms=5&ei=188
Cranham Camp
26 August - 30th August
Watch this space !
more details to follow
Parallel London

4th September 2016

THE WORLDS FIRST FULL INCLUSIVE FUN PUSH RUN
Click link for full details:
http://www.maxappeal.org.uk
/events/content.asp?ms=5&ei=201
Are you thinking of holding an event or fundraising for Max Appeal?
Please do let us know and we can help you promote your event.
Email us at:  info@maxappeal.org.uk
News & Research
Accessing services for 22q11 DS patients
Please tell us about your experiences of accessing services for your healthcare needs in relation to 22q11 DS. 

We have drafted a survey to help us identify the healthcare costs associated with 22q11 DS. We hope to present information to the APPG for 22q11 Syndrome at parliament and it will help us build a case for the support needed by those affected by 22q11 DS. 

We would like to gather at least 100 responses, so please take the time to answer the questions. 

Here is the link; 
https://www.maxappeal.org.uk
/news/content.asp?ni=360

 
22Q At the Zoo 2016
 
As you were probably aware on Sunday 22nd May 2016 Max Appeal helped host a 22q at the Zoo worldwide day. 

We held the event at 9 zoo's across the UK. Bristol, Camperdown, Chester, Dublin, Paradise, Marwell, Newquay, Twycross & Yorkshire.

For full story and photo's please click link:
https://www.maxappeal.org.uk
/news/content.asp?ni=362

 
Small Charity Week Ebay Auction 

The eBay Small charity auction has now started and will run through to the 26th.
 
Our auction items are as follows
 
1 no - Class 365 train driving simulator experience 
1 no - Class 319 train driving simulator experience 
1 no - Stevenage FC football shirt signed by Charlie Adams
2 no - Stevenage FC footballs signed by the first team

http://stores.ebay.co.uk/smallcharityweek/Max-Appeal-/_i.html?_fsub=22993320011&_sid=1096514691&_trksid=p4634.c0.m322
Beautiful hand made bracelets & keyrings
Beautiful Bracelets & keyrings hand made by Emma Bloor. 
Bracelets £5 each 
Keyings £2 each 
£1 per delivery 
All profits to Max Appeal. 
Thank you Emma Bloor for making these. They are really lovely. 
Please email me at steph@maxappeal.org.uk with your interest (each one is numbered) and I will send you a paypal invoice.
 
 
Max Appeal Material Shopping Bags

We have some Max Appeal material shopping bags for sale, great for putting in your handbag when out shopping.
£1.50 each plus £1.00 p & p.

Please email me at steph@maxappeal.org.uk 
We will forward a paypal invoice.

 
What is 22q deletion?
If you haven't heard of it please spare 3 minutes of your time to take a look at this video. 
It is really is so important to create a greater awareness of this genetic condition in the wider population, not just in the existing 22q community

https://www.youtube.com/watch?v=DCzFVMvCK4Y&app=desktop
 
Max Appeal Selfie Poster
Take a Selfie & Raise Awareness for Max Appeal
Download yours now:
https://www.maxappeal.org.uk /news/content.asp?ni=323

 
A big Max Appeal Thank you to....
Music for Zack
Sammi Foreman & family & friends held a fund raising night called Music for Zack on the 6th May. 
There were 3 bands who performed (all giving their time for free) 
Sammi would personally like to thank: Debbie, Carl, all the band's, and everyone else who went and donated. 

They raised a whopping £2382.15, and £476.43 of that goes to Max Appeal. 

Thank you guys for your support. 

To see more info:
http://www.maxappeal.org.uk
/fundraising/a_great_big_thank_you.......

 
Thank you Team Lucia
Manchester 10K run 

On Sunday 22nd May, "Team Lucia" ran the Manchester 10k, there was 14 of us in total, running in Max Appeal t-shirts, helping raise awareness of 22q11DS. Knowing all these people were running for our little girl was amazing and quite emotional, we can't thank them all enough!!! Race day was brilliant, the atmosphere and support from spectators along the route was amazing. Lucia was waiting at 4K with her big brother, Grandma and Grandpa to cheer us all on - she definitely gave her Daddy and me the boost we needed to get round. We started out just wanting to raise awareness for Max Appeal and 22q, with hopefully raising a few £££s along the way. We definitely didn't expect to raise as much as we did - £2,590 - and we are so grateful to everyone who has supported us. xxxxx 
https://www.maxappeal.org.uk
/fundraising/a_great_big_thank_you.......
Thank you to all of our volunteers and fundraisers
 
Please join us in saying a massive ‘thank you’ to our wonderful volunteers and fundraisers who help us in delivering support everyday across the UK.
We couldn't do any of this without you.
Achievements
22Q Achievements 
We would like to share with you the wonderful achievements accomplished by our 22Q members:

To see more of our fantastic 22qer achievements please click here:
https://www.maxappeal.org.uk
/max_and_friends/achievement_gallery
Jade D of E Award
I never would have even imagined Jade taking part in something like this, but it was suggested to us by a D of E leader at Jades special needs social club. She goes once a week to information sessions where they learn about First Aid, Map Reading, insects, spotting potential dangers in the countryside, planning to cook dinner on a camping stove, how to put up a tent, planning to pack a backpack, but most of all how to be away from Mum and a Dad with no carer for a short time, including overnight, this is a huge confidence builder. 
For full story:
http://www.maxappeal.org.uk
/max_and_friends/achievement_gallery
Donate
Just Giving...

To Donate to Max Appeal is so easy.. Just text MAX to 70660 to donate £5. 
You can also donate via JustGiving here:
http://www.maxappeal.org.uk/fundraising/donate
Max Appeal Collection Tins

We have Max Appeal collection tins. If you are interested in having one for your local pub/shop or event you are holding please email me at steph@maxappeal.org.uk
Thank you
Donating with Payroll Giving is a simple and easy way to give to Max Appeal from your salary

A donation to Max Appeal each pay day will help us continue our work supporting children and their families affected by 22q11 Syndrome

See how giving as you earn works 
Your pledge... Cost to you at 20% tax rate Cost to you at 40% tax rate
£5 £4 £3
£10 £8 £6
£20 £16 £12

For more information, please click on this link:  http://www.maxappeal.org.uk/news/content.asp?ni=303
Information Ordering
PARENT/CARER & PROFESSIONAL CONSENSUS DOCUMENT
If you wish to order a copy of the parent/carer or professional consensus document, please use the link below.
http://www.maxappeal.org.uk/knowledge/consensus_document
Copies can also be downloaded.
 
Max Appeal About Us Leaflet
 
The new Max Appeal leaflets are now available to print off or request a paper copy
https://www.maxappeal.org.uk/knowledge/for_everyone.

 
Contact Details
Please do remember to update us if you change your address, telephone number or email address so that we can keep our database correct and keep you up to date with what's happening at Max Appeal.
Please email us at info@maxappeal.org.uk
Thank you
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