Max Appeal Ezine August 2016 
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Max Appeal E-Zine
 August 2016
Events, News & Information
We hope you enjoy seeing what events and fundraisers are coming up in August and future months and also what has been happening in the last couple of months.

We also  like to keep you updated with important news and to remind you what Max Appeal can offer you.

If you do have any comments or queries, please email us at
  • Forthcoming events & fundraisers in August and beyond!
  • News & Research
  • Thank you
  • Achievements
  • Donate
  • How to order Consensus documents
  • Change of contact details
Forthcoming events and Fundraising ideas
Great North Run
11th September 2016

Max Appeal has secured a Bronze + package for the Great North Run 2016, guaranteeing 35 charity places our most ever and a marquee. Email for an entry form. 
Click here for more info:
Yorkshire Three Peaks Challenge
23rd July 2016 
Mark Tripp, Debbie Payne, Lee & Terri Morgan, Chris Meldrum, Simon Lonsdale, Steve Robinson, Mike & Maria Harvey-Ascroft, Darren Daniel and Suzanne Starkey ............ We will be ably led by our guide Martin Barter 

On Saturday 23rd July 2016 Team Max Appeal will be taking on the Yorkshire Three Peaks challenge to fundraise for Max Appeal and to help raise awareness of 22q11 Deletion Syndrome. 

Full Story:

Just Giving Page:
Have a Brew for 22Q!
Look out for more "Have a Brew for 22Q" events near you.
All of the "Have a Brew for 22Q" events can be found here:

Or why not hold your own?

With an estimated 35,000 people, who are living with 22Q in the UK, you can do something to help and have a great time with friends and family.
Put the kettle on....Get together, invite all your friends and family, set the date, put the kettle on and get the cakes in the oven. It's as simple as that. 
Free Tea Party PackHave a Brew pack includes 6 balloons, 6 cake toppers, A3 poster, bunting and money box. 
To register your event and request your free pack please email: with your name & address. 
For further information please go to
Day on the Beach, Scarborough
24th July 2016
 The annual Scarborough day on the Beach meet up will be on Sunday 24th July this year. This will be the 5th year of our meet up and is open to all Max Appeal members new and old. It is a very friendly day so please come along if you are free. We shall meet up on the North Beach, more details to follow nearer the time.
Family Crafty Fun Day for Max Appeal and 22q Awarerness
23rd July 2016
Hampson Park Community Centre 
Hampson Park, Webb Rise, SG1 5QU Stevenage

Lots of crafty stalls, fun and entertainment, bric a brac etc. 
Raising funds for Max Appeal a charity that supports families affected by 22q deletion/duplication syndrome
Prudential Ride London
30th July 2016

Entries to the 2016 Prudential RideLondon-Surrey 100 Peloton Relay are now open! This team challenge is open to UK-based businesses and charities. 

The Peloton Relay requires a team of four riders representing the same organisation or charity.

For further details:
Shuttleworth Family Meetup
3rd August 2016
2nd annual Max Appeal meet up at the Shuttleworth Museum. 

After the success of last year the Tripp's will once again be hosting a meet up at the fabulous Shuttleworth Collection. 
Shuttleworth is based in Bedfordshire close to the A1 and is a wonderful small vintage aircraft museum with things to do for all ages. For the little ones it has a fabulous outdoor play park and of course the vintage aircraft on display in the hangars. It also has a working grass runway with small planes coming and going all day along with helicopters. 
Full details:
Waddecar Youth Activity Weekend
12th August 2016 to Monday 15th August 2016
Max Appeal Youth Activity Weekend 
Waddecar Activity Centre, Wood Top, Goosnargh, Preston, PR3 2 EU 
Max Appeal invite you to attend a youth activity weekend for 7 – 25 year olds based at Waddecar, in the Forest of Bowland, an area of outstanding natural beauty. The weekend is designed to help young people relax and enjoy some time together and it is an opportunity to meet other children and young people affected by 22q. 
The theme of the weekend is building confidence and self-esteem, working in teams and having fun. We are providing activities for all abilities in a safe environment. Activities include; canoeing, raft building, shooting, pond dipping, climbing, hike nature walk, team games, crafts, bush craft and a challenge course. 
Cranham Camp
26 August - 30th August
Max Appeal invite you to attend a youth activity weekend for 7 – 25 year olds based in the beautiful Cotswold Hills to help the young people relax and enjoy some time together and it is an opportunity to meet other children and young people affected by 22q. 
The theme of the weekend is building confidence and self-esteem, working in teams and having fun. We are providing activities for all abilities in a safe environment. Activities include; archery, shooting, grass sledging, traverse wall, hike/ nature walk, team games, cookery, crafts, bush craft, dam building and challenge course. 

Click link for booking:
Max Appeal meetup Warrington Sensory Room
5th August 2016
Warrington Play & Sensory Centre for Friday 5th August 12.00-2pm 
Meet up, organised by Wendy Cavaliere. 

Email us at for further details. 
Wicksteed Park Max Appeal Member Meetup
21st August 2016
We are planning a summer meet up, 
Wicksteed Park, near Kettering, Northamptonshire on 
Sunday 21st August 2016 
Time to be confirmed 
There seems to be a lot of different things to do, whatever you want to make of your day out 
We hope you can come and join in for a Max Appeal Summer meet up 

click here for more details:
Parallel London

4th September 2016

Click link for full details:
Birmingham Half Marathon
16th October 2016
Run a Half Marathon for Max Appeal!
Fancy a half? 
The Great Birmingham Run half marathon, famous for its fantastic atmosphere, returns to Birmingham on Sunday 16 October. With bands on the run and thousands of supporters to keep you motivated, this is an event not to miss! And don't forget, all 2016 Great Birmingham Run half marathon entrants will be eligible for an exclusive entry window into the 2017 marathon ahead of general entries.
For full details please click link below:

Great Manchester Run 2017
28th May 2017
Why you should take part in next year's Great Manchester Run on Sunday 28 May...

Be part of a fantastic day of running in the heart of the city, and don't forget, the 10k event is shown live on the BBC. 
For further details click link below:
Edinburgh Marathon Fest
27th May 2017 to Sunday 28th May 2017
We've got the perfect hangover cure... 
And no, it's not a fry up - EMF 2017 has launched! 

If you, like us, are suffering from a bit of an emf2016 induced hangover then we've got just the remedy - the 2017 Edinburgh Marathon Festival!

Ohhh rest for the wicked! The dates for your diaries are 27th and 28th May 2017 over the bank holiday weekend.

And guess what...entries are already open at You will benefit from a discounted early bird price up until midnight on 12th June! Why not take advantage and enter now? 
London to Paris Bike Ride
6th June 2017 to Sunday 17th September 2017
London to Paris Bike Ride 
2017 Dates: 

London to Paris Bike Ride 
7 Jun 2017 - 11 Jun 2017

London to Paris Bike Ride 
19 Jul 2017 - 23 Jul 2017 

Register Now 
Register now £125 
London to Paris Bike Ride 
16 Aug 2017 - 20 Aug 2017
London to Paris Bike Ride 
13 Sep 2017 - 17 Sep 2017 
Contact for further information
Birmingham International Marathon
15th October 2017
To be staged for the first time on Sunday 15 October 2017, the Birmingham International Marathon will cement the city's position as the European Capital of Running. 
Further information please click here or email
Are you thinking of holding an event or fundraising for Max Appeal?
Please do let us know and we can help you promote your event.
Email us at:
News & Research
Great Northern and Thameslink staff get on their bike (and much more) to raise money for charity

Railway workers from Thameslink and Great Northern have raised over £1,600 for children with genetic disorders during a Charities Week. 

Thameslink and Great Northern have been backing the Max Appeal charity which raises awareness of the DiGeorge syndrome, VCFS and 22q11.2 deletion syndrome (DS) and gives families affected the essential support they need. 

Great Northern Hitchin depot driver Mark Tripp of Biggleswade (pictured centre), has a son, Adam, aged 10, with the condition. A trustee of the charity himself, he presented the cheque to Max Appeal's chair of trustees Julie Wootton.

For Full story, please click link below:
Accessing services for 22q11 DS patients
Please tell us about your experiences of accessing services for your healthcare needs in relation to 22q11 DS. 

We have drafted a survey to help us identify the healthcare costs associated with 22q11 DS. We hope to present information to the APPG for 22q11 Syndrome at parliament and it will help us build a case for the support needed by those affected by 22q11 DS. 

We would like to gather at least 100 responses, so please take the time to answer the questions. 

Here is the link;

Small Charity Week Ebay Auction 

We had 5 items donated for our small charity auction and raised £318.32 

4 of the 5 items sold. 

Thank you to all who donated and made bids.
Max Appeal Ebay Shop.
We are just putting the final touches to our new Max Appeal Ebay shop.  We will keep you updated. 
Max Appeal Selfie Poster
Take a Selfie & Raise Awareness for Max Appeal
Download yours now: /news/content.asp?ni=323

A big Max Appeal Thank you to....
A big thank you to Mark Elston - Iron Man Challenge -
Raising £1,444.00 in a 70 mile triathlon. The event went really well, apart from torrential rain on the bike section! 

It was quite emotional as I rode into the event site to transition from bike to run. I only started completing triathlons this year & I'd put a lot of effort into my swimming & running in particular, so I was so happy to see my wife and kids as I started the half marathon! 

When I started to feel tired, I just thought of my daughter Heidi and all of the operations, hospital appointments & other challenges that she's had with Di George Syndrome. My pain was nothing & it really helped my motivation. 
A big thank you to Sue, Lucy & Nicola Gilbert for completing the Colour Run and raising just over £800
We had a great laugh on the walk, and are all so pleased to have raised so much for our chosen charity Max Appeal. We chose Max Appeal because it helps people with VCFS like my sister Lucy who walked with us. The syndrome has given her very painful joints, particularly her knees, so this walk was really an accomplishment for her. Heres us at the beginning and end! We raised just over £800.
Thank you Polwarth Nearly New Sale.
Thank you so much for your support to Max Appeal and a massive thank you for the fundraising and donation of £900.00 

This money will really help to support families who are affected by 22q. 

The Polwarth nearly new sale is always a busy sale with ques along the street. I love this sale for kids stuff and always get great bargains! Its always buzzing and full of people of all ages. It's run within Polwarth Church and some funding goes to the church. Other funding goes to charities. I saw on their previous poster that they had charities along the bottom and loved the thought of Max Appeal appearing on it and raising awareness of 22q as no one has ever heard of it. The money is split between the chosen charities and all the hard work is done by the girls that run it, Elaine and friends. I was amazed by the amount donated to Max Appeal and extremely grateful they replied to my emails and were happy to include Max Appeal. 
A big thank you to Lisa Franklin & Amanda Burgoyne who raised over £800 at the Annual Duck Race
Amanda and myself have been wanting to raise some money for Max Appeal for a long time and were just waiting for the right opportunity to do so. My dad was helping to organise an Annual Duck Race Day so we asked if we could have a stall which he said he yes and then told us that Max Appeal would be one of their main charities on the day and we would get to keep any money made on our stall plus 25% of the overall money taken on the day we were thrilled.
Full story:
Thank you Ellie for fundraising for Max Appeal -
Completing colour obstacle rush

Ellie's fundraising on behalf of Max appeal, she successfully completed the colour obstacle rush at Uttoxeter racecourse on Saturday 18th June 2016. 
So far her JustGiving page has raised just over £100 and the sponsor sheet has £119. 
It was a brilliant effort by her and we are very proud of her efforts! Alex her brother(22q11 deletion) enjoyed watching her take on the challenge of the course and was at the finish line to greet her along with her mum Stephanie 
Kind regards Ian Kinnear 

Well Done Ellie. Brilliant fundraising. A huge Thank You from Max Appeal 
Graham & Lesley Allen
Thank you for your Support
Last Saturday (19th June) Lesley held a table top sale in Aid of Max Appeal on the street outside their house. She was ably assisted by Tom Wilson along with his older brother and sister Niall and Niamh. It was part of a neighbourhood sale day where there were up to 40 stalls. 

Every one was very generous and Lesley raised £125.75p on the day. 

Wonderful support. Thank you all that helped. 
Thank you James Parker & KiffKaf
Wonderful support from James and KiffKaf. They raised £95.30 for Max Appeal. Thanks guys.
Thank you to all of our volunteers and fundraisers
Please join us in saying a massive ‘thank you’ to our wonderful volunteers and fundraisers who help us in delivering support everyday across the UK.
We couldn't do any of this without you.
22Q Achievements 
We would like to share with you the wonderful achievements accomplished by our 22Q members:

To see more of our fantastic 22qer achievements please click here:
Just Giving...

To Donate to Max Appeal is so easy.. Just text MAX to 70660 to donate £5. 
You can also donate via JustGiving here:
Max Appeal Collection Tins

We have Max Appeal collection tins. If you are interested in having one for your local pub/shop or event you are holding please email me at
Thank you
Donating with Payroll Giving is a simple and easy way to give to Max Appeal from your salary

A donation to Max Appeal each pay day will help us continue our work supporting children and their families affected by 22q11 Syndrome

See how giving as you earn works 
Your pledge... Cost to you at 20% tax rate Cost to you at 40% tax rate
£5 £4 £3
£10 £8 £6
£20 £16 £12

For more information, please click on this link:
Information Ordering
If you wish to order a copy of the parent/carer or professional consensus document, please use the link below.
Copies can also be downloaded.
Max Appeal About Us Leaflet
The new Max Appeal leaflets are now available to print off or request a paper copy

Contact Details
Please do remember to update us if you change your address, telephone number or email address so that we can keep our database correct and keep you up to date with what's happening at Max Appeal.
Please email us at
Thank you
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