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Max Appeal Ezine October 2016 
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Max Appeal E-Zine
 October 2016
Events, News & Information
We hope you enjoy seeing what events and fundraisers are coming up in October and future months and also what has been happening in the last couple of months.

We also  like to keep you updated with important news and to remind you what Max Appeal can offer you.


As the main awareness day on the 22nd November approaches we are hoping to help our members with organising lots of fun events and activities throughout the whole of November, events such as 'have a brew for 22q' and family meet ups.
We would also love to promote your 22q stories and more importantly highlight achievements, these will be posted each day throughout November via Facebook, Twitter and the Max Appeal website.

Please email us your pictures and a few words (max 100) telling us how you've overcome any 22q boundaries so that we can show the world. Please include age and first names.  For this to be a success and to achieve maximum coverage we would need at least 30 so please help us get behind the month of November and make it the biggest awareness month to date.

 

If you do have any comments or queries, please email us at info@maxappeal.org.uk.
  • Forthcoming events & fundraisers in October and beyond!
  • News & Research
  • Thank you
  • Achievements
  • Donate
  • How to order Consensus documents
  • Change of contact details
Forthcoming events and Fundraising ideas
Have a Brew for 22Q!
22q Awareness Month is November
so why not hold a Have a Brew Event to raise awareness and money.


Look out for more "Have a Brew for 22Q" events near you.
 
All of the "Have a Brew for 22Q" events can be found here:
https://www.maxappeal.org.uk/events/

Or why not hold your own?

With an estimated 35,000 people, who are living with 22Q in the UK, you can do something to help and have a great time with friends and family.
Put the kettle on....Get together, invite all your friends and family, set the date, put the kettle on and get the cakes in the oven. It's as simple as that. 
Free Tea Party PackHave a Brew pack includes 6 balloons, 6 cake toppers, A3 poster, bunting and money box. 
To register your event and request your free pack please email:  steph@maxappeal.org.uk with your name & address. 
For further information please go to http://www.maxappeal.org.uk/news/content.asp?ni=227
November is 22q Awareness Month
As the main awareness day on the 22nd November approaches we are hoping to help our members with organising lots of fun events and activities throughout the whole of November, events such as 'have a brew for 22q' and family meet ups.
We would also love to promote your 22q stories and more importantly highlight achievements, these will be posted each day throughout November via Facebook, Twitter and the Max Appeal website.

Please email us your pictures and a few words (max 100) telling us how you've overcome any 22q boundaries so that we can show the world. Please include age and first names.  For this to be a success and to achieve maximum coverage we would need at least 30 so please help us get behind the month of November and make it the biggest awareness month to date.


Email: info@maxappeal.org.uk
Birmingham Half Marathon
16th October 2016
Run a Half Marathon for Max Appeal!
Fancy a half? 
The Great Birmingham Run half marathon, famous for its fantastic atmosphere, returns to Birmingham on Sunday 16 October. With bands on the run and thousands of supporters to keep you motivated, this is an event not to miss! And don't forget, all 2016 Great Birmingham Run half marathon entrants will be eligible for an exclusive entry window into the 2017 marathon ahead of general entries.
For full details please click link below:
https://www.maxappeal.org.uk
/events/content.asp?ms=5&ei=209


 
Edinburgh Marathon Fest
27th May 2017 to Sunday 28th May 2017
We've got the perfect hangover cure... 
And no, it's not a fry up - EMF 2017 has launched! 

If you, like us, are suffering from a bit of an emf2016 induced hangover then we've got just the remedy - the 2017 Edinburgh Marathon Festival!

Ohhh yes...no rest for the wicked! The dates for your diaries are 27th and 28th May 2017 over the bank holiday weekend.

And guess what...entries are already open at www.edinburghmarathon.com. You will benefit from a discounted early bird price up until midnight on 12th June! Why not take advantage and enter now? 
Great Manchester Run 2017
28th May 2017
Why you should take part in next year's Great Manchester Run on Sunday 28 May...
RUN FOR MAX APPEAL !

Be part of a fantastic day of running in the heart of the city, and don't forget, the 10k event is shown live on the BBC. 
For further details click link below:
https://www.maxappeal.org.uk/
events/content.asp?ms=5&ei=208
London to Paris Bike Ride
6th June 2017 to Sunday 17th September 2017
London to Paris Bike Ride 
2017 Dates: 
London to Paris Bike Ride 
7 Jun 2017 - 11 Jun 2017
London to Paris Bike Ride 
19 Jul 2017 - 23 Jul 2017 
Register Now 
TOUR DE FRANCE 
ROUTE ONE 
Register now £125 
London to Paris Bike Ride 
16 Aug 2017 - 20 Aug 2017
London to Paris Bike Ride 
13 Sep 2017 - 17 Sep 2017 
Contact Claire@maxappeal.org.uk for further information
http://www.globaladventurechallenges.com/
Birmingham International Marathon
15th October 2017
To be staged for the first time on Sunday 15 October 2017, the Birmingham International Marathon will cement the city's position as the European Capital of Running. 
Further information please click here or email paul@maxappeal.org.uk
https://www.maxappeal.org.uk/
events/content.asp?ms=5&ei=206
Are you thinking of holding an event or fundraising for Max Appeal?
Please do let us know and we can help you promote your event.
Email us at:  info@maxappeal.org.uk
News & Research
Great North Run 2016
Thank You Team Max Appeal
Team Max Appeal rocked up to the new 5km run at Gateshead in the early hours of Saturday morning, where Archie Wootton ran in the new Max Appeal livery. The atmosphere under the Tyne bridge is always electric when the runners are warming up. 
So far Team Max Appeal have raised over £17,600
Full story: https://www.maxappeal.org.uk
/news/content.asp?ni=402
Wicksteed Park Max Appeal Member Meetup
21st August 2016
A big thank you to the Ryan family who organised a members meetup up at Wicksteed Park.  It looks like you all enjoyed yourselves.
If you would like to arrange a meetup local to you, please contact us for help and support.  info@maxappeal.org.uk
https://www.maxappeal.org.uk/news
/content.asp?ni=397
Cranham Camp
26 August - 30th August
MAX APPEAL 
YOUTH ACTIVITY WEEKEND 
A fantastic time was had by all.
Full story here:
https://www.maxappeal.org.uk/new
s/content.asp?ni=401


CRANHAM SCOUT CENTRE, CRANHAM, GLOUCESTERSHIRE, GL4 8HP 

 
BACCH Conference Newcastle September 2016
Max Appeal Trustee Martin Kennedy manned a stall
The BACCH (British Association for Community Child Health) Conference is an annual conference attended by Consultant Paediatricians from all over the Country. In September Max Appeal Trustee and 22q parent Martin Kennedy attended the Conference on behalf of Max Appeal to increase awareness of Max Appeal and the 22q condition as a whole. 

For full story please click here:
https://www.maxappeal.org.uk
/news/content.asp?ni=395
New Leaflets Available
Mental Health Disorders in 22q11.2 DS

https://www.maxappeal.org.uk/knowledge
/mental_health_disorders_in_22q11_ds_leaflet

and
Information for Students Leaflets

 
Family Fun at Warrington Sensory Zone

Wendy arranged a wonderful 22q family meetup at the Sensory Zone in Warrington. 

Max Appeal donated the money towards the day. 
Contact us if you would like help towards arranging another 22q family meetup. It's a great way to meet up with other families and share similar experiences. 


 
Accessing services for 22q11 DS patients
Please tell us about your experiences of accessing services for your healthcare needs in relation to 22q11 DS. 

We have drafted a survey to help us identify the healthcare costs associated with 22q11 DS. We hope to present information to the APPG for 22q11 Syndrome at parliament and it will help us build a case for the support needed by those affected by 22q11 DS. 

We would like to gather at least 100 responses, so please take the time to answer the questions. 

Here is the link; 
https://www.maxappeal.org.uk
/news/content.asp?ni=360

 
New Max Appeal 22q Information Cards
You can now request business sized cards to hand out to people to raise awareness on the condition.

Order form below and an option to donate.:
https://www.maxappeal.org.uk
/knowledge/consensus_document

 
ECHO Study - Motor Disturbances
Can you help us? 

The Experiences of Children with cOpy number variants (ECHO) study at Cardiff University is carrying out research in children between 6-17 years old who have been diagnosed with 22q11.2 Deletion Syndrome, or 22q11.2 Duplication. We are interested in their behaviour, psychological and intellectual functioning, along with motor coordination and daily functioning. 
Full details:
 https://www.maxappeal.org.uk/
research/echo_study_-_motor_disturbances
Max Appeal Ebay Shop.
Our new Max Appeal Ebay shop is now open.. 
http://www.ebay.co.uk/usr/maxappeal99

Just a few items at the moment but keep checking for new items over the coming months

 
Raffle
Molly the Elephant
Best friends with Maxi Bear.
On Line raffle coming up next month for 22q awareness month
Look out for details in next month ezine.

 
 
Max Appeal Selfie Poster
Take a Selfie & Raise Awareness for Max Appeal
Download yours now:
https://www.maxappeal.org.uk /news/content.asp?ni=323

 
A big Max Appeal Thank you to....
Quiz Night
1st September 2016

Thank you Anita and Brothers of charity for holding a quiz night and raising a wonderful £370 for Max Appeal
Lucy Febrey Bungee Jump for Max Appeal

On Saturday 13th August Lucy Febrey took part in a bungee jump on behalf of Max Appeal. She raised a fantastic £370 for Max Appeal. 

Full story:
https://www.maxappeal.org.uk/
news/content.asp?ni=394
Thank you to all of our volunteers and fundraisers
 
Please join us in saying a massive ‘thank you’ to our wonderful volunteers and fundraisers who help us in delivering support everyday across the UK.
We couldn't do any of this without you.
Achievements
Zach
Well done on your swimming certificate and badge.

 
22Q Achievements 
We would like to share with you the wonderful achievements accomplished by our 22Q members:

To see more of our fantastic 22qer achievements please click here:
https://www.maxappeal.org.uk
/max_and_friends/achievement_gallery
Donate
Just Giving...

To Donate to Max Appeal is so easy.. Just text MAX to 70660 to donate £5. 
You can also donate via JustGiving here:
http://www.maxappeal.org.uk/fundraising/donate
Max Appeal Collection Tins

We have Max Appeal collection tins. If you are interested in having one for your local pub/shop or event you are holding please email me at steph@maxappeal.org.uk
Thank you
Donating with Payroll Giving is a simple and easy way to give to Max Appeal from your salary

A donation to Max Appeal each pay day will help us continue our work supporting children and their families affected by 22q11 Syndrome

See how giving as you earn works 
Your pledge... Cost to you at 20% tax rate Cost to you at 40% tax rate
£5 £4 £3
£10 £8 £6
£20 £16 £12

For more information, please click on this link:  http://www.maxappeal.org.uk/news/content.asp?ni=303
Information Ordering
PARENT/CARER & PROFESSIONAL CONSENSUS DOCUMENT
If you wish to order a copy of the parent/carer or professional consensus document, please use the link below.
http://www.maxappeal.org.uk/knowledge/consensus_document
Copies can also be downloaded.
 
Max Appeal About Us Leaflet
 
The new Max Appeal leaflets are now available to print off or request a paper copy
https://www.maxappeal.org.uk/knowledge/for_everyone.

 
Contact Details
Please do remember to update us if you change your address, telephone number or email address so that we can keep our database correct and keep you up to date with what's happening at Max Appeal.
Please email us at info@maxappeal.org.uk
Thank you
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