On 10 September our team went to Clacton-on-Sea for the annual Clacton Triathlon. It was a great day with over £4000 raised! A huge thank you to the organisers of the triathlon for their continued support and all the participants in the event.
September HighlightsWelcome to this month's issue of the Brain & Spine Foundation's newsletter! We hope you enjoy the new look and layout.
A big thank you to everyone who contributed to the TM booklet, especially Dr Anu Jacob (Consultant Neurologist), Dr M. Lunn (Consultant Neurologist), Kerry Mutch (NMO Specialist Nurse), the members of the Transverse Myelitis Society and Barbara Babcock.
Clive's storyOne of our very own Trustees, Clive Holland, has shared his personal story of why he became a Trustee and decided to leave a legacy for our charity. We're very grateful for your support, Clive!
I was walking alongside my daughter Lucy, while she was riding a horse, when suddenly she screamed in pain and dropped into my arms, unconscious. Her mother and I drove quickly with Lucy, aged nine, to the local hospital. It was a small hospital and they were not equipped to deal with the situation...
Findacure launches portal - The portal is a central hub of information and training for rare disease advocates, patient groups, and charities. It contains courses with written guides which break down complicated topics into easy to understand segments, with links to external trusted sources for additional information. Find out more about the portal here. (Source: Findacure)
What's been happening?
Outreach programme: September has been a busy month for the Outreach team. We attended the NHS Health and Care Innovation Expo in Manchester, ABIL’s conference on ‘Improving the Pathway after Brain Injury’, the Oliver Zangwill Centre’s 20th anniversary neuro-psychology conference, and last but not least: we were delighted to exhibit at The National Hospital’s conference on ‘Foundations in Neuro for Speech and Language Therapists’. A big welcome to all our new newsletter subscribers gained on our travels this month!
Extended Helpline hours: We're very pleased to announce that the Helpline will continue to have extended hours on Wednesdays only (9am - 7pm) until the end of this year. We aim to reach even more people affected by neurological problems with our specialist service.
Our web article of the month:Did you know that knitting is just one of several great activities for the brain? Find out what other activities boost your brain here!
Life After A Subarachnoid Haemorrhage Conference: Not many weeks left (5 weeks and 1 day, but no one's counting) until the UK's first conference dedicated exclusively to Subarachnoid Haemorrhage (SAH). If you have been affected directly or indirectly by a SAH in your life then this event is for you. Make sure to get tickets if you haven't already done so, they are almost sold out!
Berlin Marathon: A huge congratulations to Lucy Wrapson and Gen Madgwick who ran the Berlin Marathon on 25 September! These wonderful ladies have so far raised an incredible £2,296.64 in aid of the Brain & Spine Foundation!
Bournemouth Marathon: Good luck to Chris Ryans taking on the Bournemouth Marathon in aid of our charity this weekend! He's already completed a half Ironman and the London Duathlon...Go Chris!
Royal Parks Half Marathon: We will be cheering on our 18 #TeamBrainandSpine runners on Sunday 9 October at The Royal Parks Foundation Half Marathon in Hyde Park. We are looking for volunteers to join us at our cheer point from 9am-12pm! If you are interested in a really fun day out, then please get in touch with our events team Katherine and Alexis, clicking the button below.