THE LIVED EXPERIENCES OF PEOPLE BEREAVED BY COVID-19
10th May, 1.00pm – 4.00pm
NHS R&D North West in partnership with the Faculty of Humanities and Social Sciences, the University of Liverpool
Limited places available!
The Provocations Series was launched in July 2021 with the first of six seminars. Our fourth seminar in the series will take place on 10th May 2022, 1 - 4pm and the theme is “The Lived Experiences of People Bereaved by COVID-19”. The session which will include extended time for conversations driven by participants, invites us to explore the topic in relation to people's NHS experience and knowledge of clinical practice.
The 'provocation' approach is partly about taking people outside of their comfort zone to explore research fields that are quite different from their own areas of expertise and to see how this might challenge us to think about our work in new ways. It can initially feel quite daunting/disorienting/uncomfortable to grapple with new ideas and methods, especially given the limited time available, but that is part of the process/challenge and can be generative of new insights and learning. Everyone is in a similar position, including the researcher leading the seminars, as we are all exploring new terrain together in crossing disciplinary boundaries - there are no wrong answers! It is about sharing knowledge, experiences and ideas and how these provocations might help us think about things in a new light. The seminar is facilitated in a way that aims to create a safe, inclusive space in which everyone feels able and empowered to participate and contribute.
We hope you can spare us some time to share your thoughts with us on the 10th May. It’s free of charge to those who have a personal invitation (that means you, but if you are not able to make it and can identify someone you work with who would benefit or enjoy the session, please let us know so we can register them). Where these conversations take us remains to be seen - it is likely that you will find yourself with "more questions than answers", but hopefully you will see that these questions can help us to find where we want to go next with this work. We are aiming to identify some clear actions to take forward from each seminar, which might include, but is not limited to, continuing these conversations beyond the lifespan of the sessions - what these actions might be is up to you!
Led by Professor Lynn Sudbury-Riley and Dr Benito Giordano who are both from the University of Liverpool’s Management School, this session will explore two of the findings from their recent research with people who lost relatives to COVID-19. Lynn is a service researcher who for almost a decade has specialised in palliative and end of life care services. Benito examines the role of public policy and funding to encourage economic development. Both academics focus on research that makes a difference to policy, procedures and how systems can be shaped for positive change for people.
While there have been several important investigations into the handling of the pandemic, too many omit the voices of the bereaved. This research collected narratives from 28 people who lost 30 relatives to COVID-19. Results found experiences to be extremely arduous, with the clear message that a COVID-19 death is different to other deaths. This seminar will focus on two (of many) areas which made these experiences particularly difficult: the lack of suitable information technology and the almost total exclusion of families from end of life care and decision making.
We hope the discussion will lead to specific outcomes around the following:
How can the NHS better harness technology to enhance communication between dying patients and their families?
What can be done at a local level to improve communication between clinicians and the families of patients?
How can participants embed the principles of person-centred care so that carers are identified, supported and involved in decision making?
Places are limited and priority will be given to those personally invited by us, if you would like to explore these ideas, your relationship to them and perhaps transform the way you view your role and responsibilities, please email Joanne Simpson by clicking here.
Further details regarding the session and how to join will be sent out once you have registered.
SAVE THE DATES
We are now able to give you advance notice of our next provocation seminars and for your personal planning purposes, please make a note of the date. Further details will be sent out in due course regarding these seminars in the series.
Multimedia “home-making” in the NHS - 6th July 2022, 1-4pm