View Email in Browser External Web Site Policy

Rehabilitation Research News: May 31, 2022

From the Director's Desk

Good morning. I want to begin by acknowledging that yesterday was Memorial Day, the day we honor those who have died in our nation’s wars. I want to express my deep gratitude for those who made the ultimate sacrifice for our freedom.
On May 20th, we hosted another successful NCMRR Speaker Series. I want to thank Lynn Worobey, Ph.D., D.P.T., ATP, and Martina Mancini, Ph.D., for their excellent talks and a special thanks to Arun Jayaraman, Ph.D., PT, for moderating the Q&A. Once the recordings are made accessible, we’ll share the link from our website.

Calendar in blue circle News

Data Sharing Resources at NICHD

The Data and Specimen Hub (DASH) is a centralized resource for researchers to store, access, and share de-identified data from studies funded by NICHD. It allows investigators to meet NIH’s data sharing requirements for their studies and find study data from other investigators for secondary analysis. The site is also a portal for requesting biospecimens from selected studies in DASH.

DASH has begun collecting a DASH Codebook from data submitters as part of their study submission. The DASH Codebook is a templated data dictionary that captures information about datasets, variables, and coded values for all data submitted for a given study. It will support DASH quality assurance and data management workflows as well as facilitating search and discovery of study data by enabling visualization of annotated variables and associated statistics in DASH. The DASH team has already completed codebooks for many of the original studies in DASH, and those codebooks have proved to be useful for enhancing the searchability of DASH study data.

The DASH Codebook Template and a User Guide for filling out the Codebook are available for download from the Submission Resources page in DASH. The DASH team can provide user support as needed, and in June the team will host a training session to assist investigators with completing the DASH Codebook Template. 

Investigators are encouraged to develop their study’s DASH Codebook early in the data collection process and to make use of the recommended data standards and ontologies provided in the template. Early planning will facilitate the DASH data submission process and contribute to variable-level harmonization across DASH studies.

NIH Policy on Reporting Workplace Harassment at Grantee Institutions

Acting NIH Director Lawrence A. Tabak, Ph.D., D.D.S., issued a statement and the NIH Office of Extramural Research (OER) issued a Guide Notice to alert the NIH-funded community that NIH is implementing a general provision in the 2022 Consolidated Appropriations Act (P.L. 117-103). The law mandates that the NIH director require that NIH-funded institutions report to NIH “when individuals identified as principal investigator or as key personnel in an NIH notice of award are removed from their position or are otherwise disciplined due to concerns about harassment, bullying, retaliation, or hostile working conditions.” This provision not only enables mandatory reporting of removals and disciplinary actions to NIH but also ensures that NIH is made aware when concerns of harassment are the reason for the actions. Wherever NIH research activities take place, our priority will always be to do what we can to eliminate harassment. 

Effective July 8, 2022, NIH is requiring that the Authorized Organization Representative at NIH-funded institutions submit a notification form to NIH within 30 days of a removal or disciplinary action. Details of this new NIH requirement on supporting a safe and respectful workplace at institutions that receive NIH funding are posted on this NIH Grants and Funding webpage and the NIH Anti-Sexual Harassment website.

Request for Public Input on Potential Amendments to Section 504 of the Rehabilitation Act of 1973

The U.S. Department of Education has announced plans to gather public input on possible amendments to Section 504 of the Rehabilitation Act of 1973 in order to strengthen and protect the rights of students with disabilities.

The Office for Civil Rights (OCR) has announced that it intends to propose amendments to the department’s regulations at 34 C.F.R. pt. 104, implementing Section 504 of the Rehabilitation Act of 1973. As part of this process, OCR is seeking written suggestions from the public about how best to improve the current regulations. It would be appreciated if longer and more detailed comments were submitted by the end of June 2022, but all comments submitted before the issuance of any notice of proposed rule-making will be reviewed. Instructions and cautions are below.

Comments can be sent to

More details can be found at the webpage for Rulemaking and Regulations by the Office for Civil Rights.

Calendar in blue circle Events


Call for Papers and Presentations on Disability and Genomics

The National Human Genome Research Institute (NHGRI) will be hosting a 2-day symposium on October 6 and 7: Irreducible Subjects: Disability and Genomics in the Past, Present, and Future.

The symposium will address historical constructions of disability and ableism, with a focus on the “irreducibility” of individuals with disability and the history of disability. This event aims to develop a fuller account of the “disabled” individual that links disability rights to wider discussions around inclusivity, equity, social justice, and community fairness. Participants will discuss how disability and ability are connected to both historical and present-day eugenics, scientific and structural racism, heteronormativity, misogyny, imperialism, and colonialism. Speakers will consider how scientific program funding language—and NIH communications—can better address the complexity of disability, health, and wellness.

More about the symposium can be found at

dollar sign in blue circle Notices and Funding Opportunities

NICHD Notices and Funding Opportunities

NIH Notices and Funding Opportunities

Other Federal Funding Announcements

Department of Defense

The Office of Congressionally Directed Medical Research Programs (CDMRP) managed by the U.S. Department of Defense announces the following fiscal year (FY) 2022 funding opportunity:

FY 2022 Program Announcements

NICHD Home / NCMRR Home / Subscribe External Web Site Policy / Unsubscribe External Web Site Policy

Rehabilitation Research News is delivered bi-monthly to subscribers.

Our mailing address is:

Eunice Kennedy Shriver National Institute of Child Health and Human Development
31 Center Drive
Building 31
Bethesda, MD 20892-2425

HHS, NIH, and NICHD logos